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Side effects of Arikayce

MAC & Bronchiectasis | Last Active: Aug 19, 2024 | Replies (40)

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@carolj68

Thanks, Rick. It was actually the pharmacists at Maxor who recommended this strategy. They can direct treatment, apparently. So I just informed my ID doctor that this was what I was going to do. I hope it works because I am otherwise out of options. Were you able to continue on the Arikayce? I otherwise had no problems, at least in 7 days!

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Replies to "Thanks, Rick. It was actually the pharmacists at Maxor who recommended this strategy. They can direct..."

I was on Arikayce in the early days so only daily treatment was allowed per fda guidelines.
Insmed was no help, I could not make it through the 5th month as I could only tolerate 7-10 minutes of the treatment. Things have changed now but I have ear damage from it so never again