Replies to Hi Lori, Thank you for the link to Healthline. It was very helpful. No, my hematologist…

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Blood Cancers & Disorders | Last Active: Aug 18 4:23pm | Replies (4)

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@traillens47

Hi Lori,
Thank you for the link to Healthline. It was very helpful.
No, my hematologist has not mentioned a treatment plan. The PA, the hematologist and my rheumatologist all day, "I will talk with X, Y, or Z and see what is the best course but they never seem to get around to it so nothing happens. The last visit I had to ask the PA to look at my recent test which showed
my IGVH was unmutated. That was 2 weeks ago and I'm still waiting to hear from anyone.
After all the reading I have done it would seem I should be on some sort of treatment plan.
It's terribly frustrating.

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Replies to "Hi Lori, Thank you for the link to Healthline. It was very helpful. No, my hematologist..."

Lori, Volunteer Mentor | @loribmt | Aug 15 7:34am

I can sure understand your frustration with the lack of follow-through with your doctors.

What I’d do at this point is get a bit assertive. It’s ok to be the squeaky wheel and expect some answers. Try contacting the PA or your hematologist again either with a message through the portal or a direct phone call to the office. Either way, have a list of questions or concerns, express your frustration because of your changing medical tests with no follow through as to what it means for you and is there any course of action that should considered.

Sometimes you need to give your doctors a nudge to get your case back on top of the ‘in box’. 😉 Would it be possible to receive a second opinion from another medical facility?

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