Chronic Fatigue
Having just been through a battery of tea s for my NIH study at UNMC and a visit with my GP, it turns out that there is no answer for my CF, brain fog and racing heart. I have had Covid 4 times and no real serious symptoms other than fatigue and congestion. Blood work has been normal as well as brain scans, heart tests etc.
I used ozepmpic injections 6 weeks ago and eliminated refined sugar and junk food from my diet and dropped 20 lbs hoping that would help but didn’t notice any change in the fatigue.
my GP suggested citalipram which I just started but other than than he had no suggestions. I still stopped drinking 2 years ago and was hoping to enjoy a better life and now this has gotten in the way.
Any thoughts or ideas?
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My pcp has me on Metoprolol for the racing heart.
For the crushing fatigue, I started taking Royal Jelly made by bees. It gives you energy. I have to take reduced amounts because of medication sensitivity and LC insomnia. Slowly, over the last two months, I have gone from basically being nonfunctional to walking about 2 miles 4x a week. I am nowhere near normal, but at least I have some function. You can find it on Amazon. I get the kind mixed with honey.
Here are medications that help me:
An ADHD stimulant, such as Adderall or Ritalin.
Guanfacine ER, which is also an ADHD drug, but is not a stimulant. It helps with executive functioning.
I was previously taking Diphenhydramine (Benadryl) 25mg up to four times a day, which helped a lot with shortness of breath and exertion intolerance, but it can exacerbate prostate issues when taken for a long time, and I’m a 62 year old man, so…
I have just started taking Famotidine (Pepcid) 40mg twice a day, and it seems to be helping quite a bit with brain fog and some other inflammation related issues.
I don’t have time right now to pull together the links with information on these, but I can do that later if you need me to.
I would suggest that you see a neurologist. My GP is useless with respect to long covid, and the pulmonologist he referred me to suggested ramped pulmonary rehab, which is exactly the wrong thing for most people with long covid. My neurologist actually listens to what I have to say, and the information I find, and she will prescribe things off label when it is safe and there is some credible evidence that it may help.
Good luck!!
I'm encouraged to learn about your increase in exercise tolerance over two months. Perhaps I'll experience the same improvement in exercise tolerance!
May your recovery continue!
I was taking Ritalin for a short time and it helped but I don’t like the after effects so I stopped.
The thing that has worked the best for my fatigue is doing Stellate Ganglion Blockages with a pain specialist. For my racing heart and POTS I am taking ivabradide. I feel much better with them but I am not by any means cured.
I did have long covid symptoms for 1.5 years with fatigue, muscle aches, breathing problems and brain fog. I read about an Italian study that focused on nitric oxide that eliminated symptoms. It is now my “way of life” and I am back to normal.
This may sound strange, but a lot of covid weakness is caused by a low amount of oxygen getting through the arteries / blood vessels that are shrunk tight because of low amount of nitric oxide. You should have foods with nitrates that the body uses to make nitric oxide to allow the arteries to open up.
They say the best way to increase nitric oxide is to have dark greens. The darker the better. When we chew the greens, the good bacteria in our mouth creates the nitric oxide. (Remember, no mouthwash or toothpaste with fluoride that could knock out the good bacteria.)
I try for a type of curly Italian kale, like dinosaur or Lucinato / Tuscan that looks tough but is tender. ( Other choices are arugula or spinach. ) I rinse the kale well and than pull it off the stems and cut it up with kitchen shears.
Beets are a great source of nitrate and you could put some on the greens.
Blueberries are good and could also be added to the salad or have by themselves.
Watermelon is a good source.
If you could find unsweetened cocoa and add honey. I put it in decaf coffee, but you could add or use milk or almond milk instead.
Nuts and celery are a good source, so a nut butter on celery sticks would be good.
Also include some orange slices for vitamin C which is an antioxidant that helps with nitric oxide production.
I take L-Arginine and Citrulline that helps produce nitric oxide. The Italian study used L-Arginine. If you are on any prescription medication be sure to check for interactions.