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Meet fellow Caregivers - Introduce yourself

Caregivers | Last Active: Nov 12, 2023 | Replies (707)

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@mnina

Hi, I’m mnina. I cared for my grandmother for the last year before she passed from Dementia and other complications. My husband I have cared for during the past 4 plus years, he is in palliative care with terminal cancer, he has almost passed 4 times in the past four years, with 2 of those times being just this past December. I’m an expat American from California, living in Australia. In the wee hours of the night, when I felt so alone and scared , I stumbled onto this incredible support system through the Mayo Clunic newsletter I received by email. IndianaScott was so helpful as were the others. I could say what I was feeling and didn’t feel so alone and guilty. They are hoping to set up something like this here by 2019. Unpaid Carers are worth 2 billion dollars to the government here, so they are investing in services. We do work! We work 24/7, unless we have respite. I don’t even like when I hear people say “ so how have you been out of work?”. That’s a fallacy that needs to be changed. I look forward to being a part of this community and thank you for being there. I wish you all peace and good self care, on this very difficult road, one day at a time.

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Replies to "Hi, I’m mnina. I cared for my grandmother for the last year before she passed from..."

Hello @mnina Thank you for the kind words about the value you are finding in Connect! It was the wee hours of the night when I found Connect as well! Truly amazing when you think of what technology has brought us from the days of sending airmail letters!

If I remember correctly (which is always iffy I know) @colleenyoung may have actually made a presentation in Oz to a group about Connect. Good luck with getting your Australian version up and running!

Wishing you continued strength, courage, and peace!

Your memory serves you well, Scott. I did give a presentation about Mayo Clinic Connect in Melbourne, Australia in 2016. There was great interest in the utility and importance of connection in patient and caregiver support, and how this can be provided in an online format. @mnina, the lucky thing about Connect is that it knows no borders. While many members are American, we also have members from Canada, India, UK, Europe, Africa, Australia, New Zealand, China, Philippines and many other places. These are just a few of the countries members have mentioned.