CBD

Posted by glinda47 @glinda47, Aug 11 6:46pm

Hello All,

Not sure if this is allowed or not, but my rheum group has a cannabis clinic and I met with a PA about it last week about it. I don't want to take anything with THC as weed and I have NEVER gotten along.
From what I've read, there will always be a trace of THC in the CBD but I guess I'm willing to try it anyway.
The PA gave me the names of 2 places that sell only CBD, no medical mj. The places look ok. Not much choice and one looks like it's going out of business.

I know this is a stretch and don't even know if it's permitted out here, but if anyone buys pure CBD and you trust your source and are willing to share, that would be wonderful.

Thanks for any feedback on this.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

@nancy53

Does light exercise help? Swimming and Yoga have keep me mobile - and Prednisone!

I feel so fortunate to have found a geriatric group here. They truly care about us "elders". The nurses and front office staff are soooo patient with everyone. This group has restored my faith in doctors.

Good luck and feel better!

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Hi Nancy,
I used to do all of that. My hands hurt so bad in the morning I can hardly brush my teeth, let alone drive., or get up and down off the yoga mat. It's not pretty. Massage us comforting with the right person and music. It's so hot here, I don't go out much and am careful of isolating. I'll look for a geriatric group. I'm in Las Vegas if that's permissable to say. Take care.
Karo

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@nancy53

Does light exercise help? Swimming and Yoga have keep me mobile - and Prednisone!

I feel so fortunate to have found a geriatric group here. They truly care about us "elders". The nurses and front office staff are soooo patient with everyone. This group has restored my faith in doctors.

Good luck and feel better!

Jump to this post

Agree so far about exercise. Knock wood. Before this malady hit, I had been working out for over 40 years at a high level, both cardio and strengthening. Of course, I had to adjust for age and osteoporosis, but working out has always been a life saver for me, mentally, physically and emotionally. For the first time since Jan, about 6 wks ago, I began 1/2 hr of walking again.
At first, my body balked, but I continued and it's much better. If I have a flare, I do it anyway. Am also doing some strengthening but no wgts yet. Started Tai Chi a few wks ago and I do have that darned upper arm pain afterwards, but I'm going to continue and see how it goes.

You are very fortunate to have a wonderful medical group to care for you. That has to be a real source of comfort for you. Many of us are at loose ends, running around like chickens with our heads cut off. I've all but given up on docs.

May you continue to thrive.

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@karo89135

Hi Nancy,
I used to do all of that. My hands hurt so bad in the morning I can hardly brush my teeth, let alone drive., or get up and down off the yoga mat. It's not pretty. Massage us comforting with the right person and music. It's so hot here, I don't go out much and am careful of isolating. I'll look for a geriatric group. I'm in Las Vegas if that's permissable to say. Take care.
Karo

Jump to this post

Does Tylenol help? I have osteoarthritis in my hands, so I can relate. My right hand is practically useless when doing anything that requires strength and precision.

I get you on the heat! I'm in southern New Mexico and have to plan my outings carefully. You are right to remember not to isolate.

Maybe chair Yoga is the way to go? I started doing Yoga during the Covid lock down - thankful that I had an established practice before damn PMR decided to derail my life. I'm certain that kept me from becoming totally immobile. It took 3 months of Prednisone before I could edge back into Yoga on a daily basis. Now I'm almost back to pre PMR level.

I hope you are WELL soon!

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@karo89135

Hi glinda,

We are on the same page. I posted earlier the rheumatologist I was seeing quit, starting her own practice..cash only. The new one is Humana HMO and so screwed up with the office help. I have a PPO Aetna insurance so paying is not a problem. When a lot of doctors left, big corporations are buying up the practices. Staffing and quality suffers. 3-6 month waiting period for a specialist.
Try something, take it with a friend around in case of a bad reaction. Good to hear from you!
Karo

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So true about the big corps taking over medical groups. It's happened to my internist, urologist, cardio and more. Has only added to the managed care, then covid mess. Has caused more work for everyone, loooooooong phone waits, horrible lack of communication, level of care and concern, which often results in physicians' prescribing unnecessary meds.
I try not to think about the future and trying to navigate this unwieldy system in a very sick and weakened state.

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@nancy53

Does Tylenol help? I have osteoarthritis in my hands, so I can relate. My right hand is practically useless when doing anything that requires strength and precision.

I get you on the heat! I'm in southern New Mexico and have to plan my outings carefully. You are right to remember not to isolate.

Maybe chair Yoga is the way to go? I started doing Yoga during the Covid lock down - thankful that I had an established practice before damn PMR decided to derail my life. I'm certain that kept me from becoming totally immobile. It took 3 months of Prednisone before I could edge back into Yoga on a daily basis. Now I'm almost back to pre PMR level.

I hope you are WELL soon!

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Hi Nancy,
Love your state! Visited a few years ago before balloon festival.
I'm 8 years into this fiasco. Please stay alive...I like talking with you.

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@glinda47

Agree so far about exercise. Knock wood. Before this malady hit, I had been working out for over 40 years at a high level, both cardio and strengthening. Of course, I had to adjust for age and osteoporosis, but working out has always been a life saver for me, mentally, physically and emotionally. For the first time since Jan, about 6 wks ago, I began 1/2 hr of walking again.
At first, my body balked, but I continued and it's much better. If I have a flare, I do it anyway. Am also doing some strengthening but no wgts yet. Started Tai Chi a few wks ago and I do have that darned upper arm pain afterwards, but I'm going to continue and see how it goes.

You are very fortunate to have a wonderful medical group to care for you. That has to be a real source of comfort for you. Many of us are at loose ends, running around like chickens with our heads cut off. I've all but given up on docs.

May you continue to thrive.

Jump to this post

I feel blessed that my PCP diagnosed me within 10 days as having PMR, I was reluctantly prescribed Prednisone, and had immediate relief.

Those first 2 months were rough. My first available appointment with a Rheumatologist was 3 months in. At least I knew what I had.

So, yes, I feel fortunate. In my misfortune. Ha!

I hope you can find a good medical provider.

Really, it's our attitudes that will sustain us. You seem to have a great one.

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