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Meet fellow Caregivers - Introduce yourself

Caregivers | Last Active: Nov 12, 2023 | Replies (707)

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@chesneydell1965

hi everyone ,
my is tammi. the handle i use is my husband name.
im 47 years old. indiana im the sole care giver fir my husband who has sarcoidosis and now neuo sarcoidosis . im feeling helpless anf friendless

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Replies to "hi everyone , my is tammi. the handle i use is my husband name. im 47..."

Hello @chesneydell1965 Nice to e-meet you here Tammi. My name is Scott and welcome to Connect. I am sorry to read of your husband's health condition. I am sure it is terribly challenging.

This is a great place for caregivers to meet other caregivers from around the country, around the world, and around your very state!

Your statement of feeling helpless and friendless is not surprising to me -- and most likely other caregivers as well. Caregiving for someone with a chronic disease can be extremely isolating and the overwhelming nature of running your life and adding all the demands of caregiving can easily cause feelings of helplessness. It certainly did in my case!

My wife was 49 when she was diagnosed with brain cancer and I was her primary caregiver for the 14+ years of her war with brain cancer. I came to Connect exactly because I was feeling isolated and overwhelmed with all the demands of life and caregiving. I am glad you are here!

One of the best parts of this caregiving discussion area is folks can vent, talk, ask questions, and seek support from others who are on the same journey or have made the same journey.

Do you have any help with your caregiving duties? Is there a certain part of caregiving that causes you the most discomfort or is it the feeling of being constantly overwhelmed?

Courage, strength, and peace!

Hi Tammi, I’m here too caring for my older sister with progressive dementia and had a hip replacement 10 weeks ago. I have felt overwhelmed too and sleeping in a recliner next to her bed is taking its toll. We can be friends who understand and help each other push through. All I can say is capitalize on what your husband can do for himself. Strength and courage and look for joy each day. SallySue

Hi Tammi, My heart goes out to you. Can you describe what your support system is like? Do you have friends, neighbors or relatives who can help you out? Are you connected to a church or other religious organization? Do you have insurance, and if so, does it cover home health? Physical therapy? Mental health? Ben

hi tingkun55
No real support I have two grown children lives of their own they just don't slow down and help I also care for my mother who lives in the household she is a stroke victim and as for friends I used to have friends but you don't come around so much anymore you know their grandparents now and enjoying that no support

hi sallysue
I really don't have any support I also care for my mother who has a stroke victim I have two grown children and one grandchild that's three so I help babysit her as well yeah adult conversation is something I don't get much of my husband sometimes he is normal husband other times he's very angry and mental abusive on the same hand it's not him it's not who he is the disease but still hurtful all the same