Welcome to Connect, Ben @tingkun55. I'm so glad you've joined this group, and I'm sure you'll receive a warm welcome from Mentor @IndianaScott and the other members as well. I particularly like your last statement about, "hearing from folks of different ethnic backgrounds and exploring cultural and generational factors in caregiving."
I'm the moderator for Connect groups this weekend, and coincidentally, I'm originally from India! Although I don't have any experience in caregiving, I do have extended family, who've been in the States for many years, and I'm very aware of the cultural differences in caregiving.
In India, caregiving is very different from formal caregiving here. You stay with your parents as a child, as a college student, and after employment. After marriage, the son stays with the parents, and the daughter-in-law moves in, adjusting to the in-laws. A daughter, conversely, moves out after marriage to her in-laws place.
As parents age and/or disability sets in, if they were living separately, they move in with the children or vice versa. Putting parents in an"old age home" is not acceptable, and looked upon with shame. Usually, the eldest son is the “privileged” person to look after the parents. This is not universal, but very typical in the Indian culture, and completely normal. Plus, with extremely limited alternative facilities or support systems, family members prefer to care for their loved ones at all stages of illness, at home.
In my opinion, those can be positive aspects of our culture. On the other hand, caregiving in india is not recognized as a skill or a profession. The family is supposed to take it in its stride, and more often than not, it is the women who have to give up their careers to do the caregiving at home. Discussions on topics such as caregiving costs are taboo.
However, with societal changes, there have been more demands for support to family caregivers; especially from families who have lived away from home, say in the States, and then return home. There is more more visibility for caregiving as people are understanding the complexity and stress of this role. That being said, I will mention that if it weren't for having my younger brother living in Bombay with our parents, along with his wife and kids, I would have probably tried my best to arrange for them to come here as they grow older.
@tingkun55, we look forward to getting to know you, and hearing more about your mother and her progress. Thanks for posting such an insightful topic.
Thank you Kanaaz for your rich and detailed reply! I do think that in this era of globalization, when family members can be spread far and wide not only between states or countries but even by continents, it is hard to maintain caregiving customs and patterns which evolved over centuries. In the Indian context, what happens if the "privileged" eldest son is an engineer in Silicon Valley and the parents are in Mumbai? Does the responsibility then transfer to those who are living closer to the parents? Also, one would imagine that caregiving responsibilities would be to some extent apportioned to the amount of time individuals have available-- i.e. if an adult child is single, presumably he/she would have more time to devote to the aging parents than siblings with families of their own. Finally, if it is assumed that a woman moves in with her in-laws after marriage, what degree of power and responsibility does she have in making decisions about taking care of her in-laws? Is she accorded the same status as the in-laws' own offspring?