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Now Receiving GammaGard Bi-Weekly Infusions
Autoimmune Diseases | Last Active: Aug 22, 2024 | Replies (27)Comment receiving replies
I am not sure where to post this so I will let the mentors decide. Since I am getting IvIg every 3 weeks for my low IgG and multiple autoimmune diseases, it seemed appropriate. When I last saw my rheummy, (mid July) she remarked that since I was doing IvIg my muscle pain and weakness should not be worse. (It was.) She wants me to have a deep muscle biopses of the quadracep under a surgical setting. Luckily, I had long ago got an apt with a notable neuromuscular doc at a university hospital. My rheummy was glad to hear it was coming up next month. Sounds like she suspects a degenerative muscle disease. Any else have a deep muscle biopses and care to report on it?
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Suetex. I had a muscle biopsy of my quadriceps in 2019 at Mayo Clinic in Scottsdale. After a decade of progressive muscle weakness, pain and atrophy, it was the only test that provided an answer. I had neuromuscular toxicity from Plaquenil that I had taken for 25 years! A muscle biopsy is a valuable test when the diagnosis is uncertain or you are not responding clinically as expected. It was not bad but was uncomfortable afterwards as any surgical site does. The answer was well worth any discomfort I experienced.