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What is Non tuberculosis mycobacterium abscesses

Lung Health | Last Active: Aug 14 10:29am | Replies (6)

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@bamaqueen

I also have Abscessus. It’s a rarer mycobacterium and very difficult to treat. Antibiotic treatment usually requires at least one IV medication and two other antibiotics for many months. You should be concerned and educate yourself. I’m about 9 months since this diagnosis and still hunting for the right doctor. I was initially diagnosed with pseudomonas and had two different IV infusions that I did at home. Had a PICC line for third treatment after diagnosis of Abscessus. I did not tolerate the medication and treatment was discontinued. It’s not an easy journey, but there is a lot of information on here and other sites. Many recommend going to one of the specialty clinics like NJH Denver, Mayo, or University of Tyler. There is also the option of “watchful waiting” if your symptoms are minimal and lung damage isn’t a problem. It all needs the guidance of a knowledgeable physician. It is scary at first, but you just need to learn all you can and find the right doctors,

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Replies to "I also have Abscessus. It’s a rarer mycobacterium and very difficult to treat. Antibiotic treatment usually..."

Thank you so very much for your answer to my question. You have answered my questions I had. I have been told by my. Pulmonologist and infectious disease doctors it will be a long difficult process. But it is always better to hear from someone actually going through this. Thank you Jeff Kaplan.