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HCM with no options for medication for relief of symptoms

Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 28 7:46am | Replies (36)
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@rmhc123

Our situations sound similar. My first cardiologist placed no restrictions on exercise. My new one at Emory suggested nothing high impact. I can tell my disease has progressed in the two years since my diagnosis. I only walk and practice yoga for exercise.
Since no medicine works, I will now be starting a clinical trial study with a new drug that has yet to be approved.

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Replies to "Our situations sound similar. My first cardiologist placed no restrictions on exercise. My new one at..."
manuelpo | @manuelpo | Aug 13 9:48am

I wonder if that new drug clinical trial is "aficantem"

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metta | @metta | Aug 13 10:34pm

I'm curious... did you used to be more physically active as far as cardio and strength training? Do you think it led to increased symptoms? How can you tell your disease has progressed in the two years since your diagnosis? Have your symptoms increased? Or have your echo cardiograms changed? Have your ECG's changed? What medicine have you tried? Do you feel more confident with your new cardiologist? Just trying to make sense of this disease, which I know expresses a bit differently in each of us. Thank you so much for sharing your experience with your HCM.

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