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HCM with no options for medication for relief of symptoms
Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 28 7:46am | Replies (36)Comment receiving replies
I just had my stress-echo and they found no obstruction. Yay! but I'm still having chest pains, shortness of breath and dizziness. I was on a beta blocker for many years and side effects were not that good. I'm not even sure they helped. I am very active and work out almost every day. I want to exercise without worrying about my heart doing anything deadly. My cardiologist says not to worry. I don't trust him, but want to believe him. What is the consensus about strenuous exercise in this sort of situation? I've heard don't and do. Does anyone have an opinion? Thank you
Replies to "I just had my stress-echo and they found no obstruction. Yay! but I'm still having chest..."
Each of us is different, what may be OK for you may not be OK for me or anyone else reading this. No obstruction during a stress test is great news! Are you DRINKING enough water? Should you be adding electrolytes? (Ask about that before using.) If not, it might be why you are dizzy. May I suggest that if you do not trust your cardiologist to find one that you can trust.
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Our situations sound similar. My first cardiologist placed no restrictions on exercise. My new one at Emory suggested nothing high impact. I can tell my disease has progressed in the two years since my diagnosis. I only walk and practice yoga for exercise.
Since no medicine works, I will now be starting a clinical trial study with a new drug that has yet to be approved.