Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

Posted by grasshopper123 @grasshopper123, Aug 25, 2020

Hello
Can anyone recommend a doctor in California? Or...anywhere ? Which specialists deal in this disease? 💛🙏

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@colleenyoung

Specialists involved in the care of someone with CAEBV may include:
- Infectious disease specialist
- Immunologist
- Hematologist

Tagging fellow members, like @nataliem @mblack @jbri @dquick @michellebelle @kkathysan @lisajensen and others for their recommendations of centers that treat EBV.

Grasshopper, what specialists have you seen?

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Just to encourage you some drs say you haveCAEBV when your Epstein Barr has been reactivated and your exhausted for a year and keep testing positive for it. But I don’t think that is the same as CAEBV. That is a death sentence and they call it CAEBV when they shouldn’t and they get a lot of people scared to death telling them that!

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Can someone help me understand what exactly is your diagnosis if all 4 Epstein Barr tests are positive for over a year and the pcr test is negative? ANY help would be appreciated? Thank you so much

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Hello all,
I encourage everyone to research ozone therapy.
I just recently started with a functional medicine doctor after exhausting efforts with my MD.
I am only on my second treatment but I am very hopeful that this will cure not only EBV in my system but also my my hyper parathyroidism that I have been diagnosed with.
It is not FDA approved, but many functional medicine practices, offer it here in the US and is highly offered in the Europe.
One of my girlfriends has Lyme disease and has been getting ozone therapy as well as chelation therapy. Apparently it’s a two year process to rid the body of Lyme disease but her last bloodwork showed and the EBVirus is gone from her system. She’s been at both therapies for eight months now and her last bloodwork showed EBV antibodies were completely gone.
I am only on my second treatment, but extremely hopeful that this will cure my auto immune disease and EBV

I hope this helps.
Our journeys are frustrated by a medical system that is in the pockets of the pharmaceutical companies. In my opinion the whole system wants to keep us sick so that we are dependent on their medication’s until we die.

Best of luck to all and good health

REPLY
@cknight

Can anyone tell me what is fact for sure what is the survival rate for someone that has been diagnosed with Cronic Epsteen Barr Virous,

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I don’t know that.

I encourage you to research ozone therapy.
I just recently started with a functional medicine doctor after exhausting efforts with my MD.
I am only on my second treatment but I am very hopeful that this will cure not only EBV in my system but also my my hyper parathyroidism that I have been diagnosed with.
It is not FDA approved, but many functional medicine practices, offer it here in the US and is highly offered in the Europe.
One of my girlfriends has Lyme disease and has been getting ozone therapy as well as chelation therapy. Apparently it’s a two year process to rid the body of Lyme disease but her last bloodwork showed and the EBVirus is gone from her system. She’s been at both therapies for eight months now and her last bloodwork showed EBV antibodies were completely gone.
I am only on my second treatment, but extremely hopeful that this will cure my auto immune disease and EBV

I hope this helps.
Our journeys are frustrated by a medical system that is in the pockets of the pharmaceutical companies. In my opinion the whole system wants to keep us sick so that we are dependent on their medication’s until we die.

Best of luck and good health

REPLY
@petuniamom567

I have had high EBV titer since being diagnosed with ME/CFS over 30 years ago. I have a Primary Care Doctor,
Cardiologist, Nephrologist, Endocrinologist. Not one of these people has suggested any treatment for EBV or suggested seeing another type of doctor. The information I get from these people is that there is no treatment. Also, no one seems to know what EBV can cause. All this is puzzling to me particularly since I started participating in the Mayo Connect groups and have discovered so many people who have high titers. It seems
rather strange. Are there Mayo physicians doing research on what this disease can do to the body and how it
affects immunity? Are there physicians anywhere doing this research. If there are, they're not publishing material available to the the general public and apparently physicians don't know about this research or, I hate to say this, don't care about it. Tests for EBV should be included on all yearly blood tests that are given as part of wellness exams. They aren't. If they were, a pattern might develop. In the meantime, all of us with high titers are left to research on our own. Very peculiar for something that turns out to be fairly common and could affect our well-being. Also, consider the fact that we're in the midst of a Covid epidemic. None of this makes sense.

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I encourage you to research ozone therapy.
It may I may not be right for you…
I just recently started with a functional medicine doctor after exhausting efforts with my MD.
I am only on my second treatment but I am very hopeful that this will cure not only EBV in my system but also my my hyper parathyroidism that I have been diagnosed with.
It is not FDA approved, but many functional medicine practices, offer it here in the US and is highly offered in the Europe.
One of my girlfriends has Lyme disease and has been getting ozone therapy as well as chelation therapy. Apparently it’s a two year process to rid the body of Lyme disease but her last bloodwork showed and the EBVirus is gone from her system. She’s been at both therapies for eight months now and her last bloodwork showed EBV antibodies were completely gone.
I am only on my second treatment, but extremely hopeful that this will cure my auto immune disease and EBV

I hope this helps.
Our journeys are frustrated by a medical system that is in the pockets of the pharmaceutical companies. In my opinion the whole system wants to keep us sick so that we are dependent on their medication’s until we die.

REPLY
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