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Now Receiving GammaGard Bi-Weekly Infusions

Autoimmune Diseases | Last Active: Aug 22, 2024 | Replies (27)
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@becsbuddy

@frances007 Hi, Fran, I think I lost track of you! I would ask how you’re doing but I can read that things still aren’t great. Have you always had primary immune deficiency? I’m doing pretty well except PT really wears me out!
Take care and I hope all s going well in your life! Becky

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Replies to "@frances007 Hi, Fran, I think I lost track of you! I would ask how you’re doing..."
frances007 | @frances007 | Aug 13, 2024

In reply to @becsbuddy Apparently I was born with PI, and it manifested itself when I turned 60. Imagine my surprise after being on a medical odyssey for over two years. It’s too bad there’s not a lot of awareness about this disease, and trying to explain it, even to my doctors, is next to impossible. I’m dealing with it in the best way possible, and this includes not being a “caregiver “ as much as I was before. Thanks for the kind words

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