12 yrs of chronic pain, 14 lumbar procedures, new Rx bad!
For reasons no one explains but, the DEA is simply eliminating all Opioids. A simple and easy way to treat the hundreds of abusers by punishing those with true regional chronic pain syndrome. So after 6yrs 10 months of taking hydromorphone 8mg 5XDay, I was able to managed a large portion of lumbar pain for a 6 foot 3 inch guy. Now a problem with a new medication, Buprenorphine and Naloxone 8mg / 2mg. Problems started fast with teeth. I have never had a cavity, crack or gum issues. Now, this film goes under the tongue until it melts. My rear teeth cracked, top & bottom and broke off. Besides severe gas, diarrhea and very marginal lumbar pain help, I was scratching my head. Looking for side effects on reputable websites listed; Teeth decay, back pain, etc. What am I in for in the future? With electrodes in the epidural space, I may not find a Dr. willing to correct the problem as now surgery is extremely invasive. Dr’s have to do this when fusing a vertebrae to and other. So know, it depends on the neurosurgeon’s experience and tolerance for risk associated with open time in the OR. They may pass on my complex problem and show me the door. No one likes serious surgeries, but even fewer want to live with bad pain and a non-existent quality of life.
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So far, I'm mostly combatting severe, chronic pain with generic Norco, thanks to a good pain specialist. Opioids definitely have a place in the pharmaceutical treatment of severe, chronic pain. My only hope is that my doctor does not retire or die before I do. It seems that such brave pain specialists are rare. I offer my devout hopes for better days for everyone who's being denied opioids just because *some other people NOT under a doctor's care* are abusing them! It's completely unfair to punish those of us with legitimate pain treatment needs; it's throwing out the baby with the bath water. It's also picking the low-hanging fruit: i.e., those of us who abide by the rules and do not exceed our dosage or "doctor shop" to obtain more medication. We should not be punished for the criminal doings of of some addicted people. It takes courage for a doctor to prescribe opioids in this climate of lazy law enforcement. Punish the addicted who are committing crimes, for God's sake! Leave the rest of us ALONE.
I am uncertain if you would be a candidate but both my husband and I use ablations (burning nerves) for back pain about every 8mt to a year.
Thank you for your advice. I go Thursday for my injection and was planning on asking him about ablation. I hope it can be an option.
If you are having a radio frequency ablation, discuss it with the doctor to see if you are a good candidate. Those who served in the military and lost limb, can have ghost pain. RFA will help them 90% of the time but may need repeated every 2-3 years. I think it’s typically a bi-lateral procedure done left and right. It is done 2 or 3 times with a couple of weeks between each session. Do yourself a favor a document the times, level of discomfort and level of pain hourly. Memory is tricky but on paper, this helps the Dr know if it is worth pursuing. I hate to say this but if a Dr. doesn’t do anything, they don’t get paid. So, they have an incentive to become excited if you report, “I felt less pain for an hour, then the pain came back!” Now they feel validated to proceed but remember, an hour is not much for pain relief. Lumbar pain that I still have was gone 100%, after an epidural. But only lasted a day and 1/2. This information is better used by a surgeon who specializes in spinal cord stimulators. There job is like a RFA or an Epidural but harder. They place electrodes in the epidural space next to the many nerves that run sideways and down to group with others. Like a plate of noodles, location is crucial. 1/4” (7mm) higher or lower placement of electrodes, it either is right on, or miss.
But an RFA, keep accurate notes on pain level and time after the procedure. Once a little discomfort is over (Not Much) keep notes every hour. After it feels better, move. Walk to bedroom, go to the mail box. Watch the time and pain level, write it down. If all prior pain returns after an hour or two, tell the Dr. no. It’s a waist to time and more to go thru. Best of luck!
Thank you kindly as I move forward thru this journey! Love all.
Thank you kindly for your prayers and thoughts. 🙂
Thanks kindly for your thoughts! I can’t wait to be pain free. Maybe!
Add one more problem to this issue is even a larger multi-state healthcare clinic may not be issued a license to prescribe opioids by the DEA even it the Dr. wants too!
Sad that an un-elected group in a government agency has so much power. My thoughts go out to military personnel who come home with missing limbs and various other pain issues. What, aspirin?
Thanks for the info. I'm having a steroid spinal injection on Thursday. I will ask about ablation at my appt. I'm not a candidate for the spinal stimulator because of my double spinal fusion. After that appt with the doctor and learning that, all I could do was cry! I also was diagnosed with poly fibromyalgia rheumatica which causes pain in all the major large muscles. I'm on prednisone and trying to wean off that. I would just like to be pain free soon!
I use Percocet. The Norco made me edgy and developed a tolerance super quick (that addicted feeling). I don't have that with the Percocet. Taken it for 25 years. Like this morning - NO PAIN - NO OPIOIDS. we are each a little different. Yes, its humiliating.