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Meet fellow Caregivers - Introduce yourself

Caregivers | Last Active: Nov 12, 2023 | Replies (707)

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@moopy1950

I am the caregiver for my husband of 45 years. I fell in love with him when I was 13. Love at first sight! A few years back, my son that worked with him noticed some little changes. We went to a neurologist then and he didn't think it was Alzeheimers. We followed up a doctor visit 2 years ago and he said the same thing. You're fine, but let's put you on a CPap. Last year we went again, right after my husband retired in March, and by then I was seeing small things that cropped up in his figuring out problems, here and there. Once again, after the 7 question test and chat, he said he thought he was fine. That's when our family doctor, a personal friend called the neurologist back and convinced the neurologist he wasn't "fine."He has Early Stage and is taking both normal meds for AD. But I wasn't happy with the confusing care we got in our town, so I had him evaluated by a psychcologist here, and we decided to seek care at UTSouthwestern in Dallas. What a difference! I know there is no cure, but they have done so much more than just let us just sit here a waste away. They gave us a top notch neurologist. She suggested a drug trial that he might enter down the road. She sent him to an endocrinologist he needed and by persevering, we got into a drug trial for Aducanumab this month. I've learned that since I've loved him so long I have to be the best advocate I can. He's been a prince of a husband and father. We will fight this.Thank you for all you do!

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Replies to "I am the caregiver for my husband of 45 years. I fell in love with him..."

Hello @moopy1950 Nice to e-meet you here! I am sorry to hear of your husband's medical travails. Tough, tough, stuff for sure! I am Scott and I was my wife's caregiver for 14 years. Also for about 10 with my MIL who had dementia. I fully agree with your 'take' on medical care. Especially in my MIL's case the local doctors were unwilling to diagnose her disease and many precious months were lost as a result. It was only after seeing specialists that her care became world class and far better for her and the family.

With my wife we also had similar experiences. Once we had our neuro-oncologist with her we stuck with him for all 14 years at Mayo. It was a godsend.

Wishing you peace and strength!

Thank you so much for your kind note. I'm sure i will be needing shoulders to lean on in this jpurney. Nice to vent here..God Bless