I was a medical lab research tech/lab scientist before retirement & my husband's subsequent diagnosis with IgM-MGUS. So I tend to follow any literature, new research findings & the like.
It seems with MGUS, the resulting excess protein produced (the antibodies) attach to the peripheral nerve myelin sheaths this the PN symptoms. So it's a different form of damage than in diabetic or alcohol-induced PN. I follow the Foundation for Peripheral Neuropathy for research news. It is also, I've found, to find a neurologist with PN specific knowledge. All neurologists in my area have long waiting times and require a referral (no self-referral). If you are near to a major academic medical center, you may find such a specialist more quickly. DH struggles with the MH aspects, as he has other chronic conditions which have really limited what was a very active, fun, adventurous life. At 66 it's very challenging to address the depression, and all the feelings tgat go with that.