Hello @bensgal Nice to e-meet you here! I am sorry to learn of your husband's medical condition. It is a challenging disease in so many aspects, one of which is also caregiving for sure.

I was the primary caregiver for my wife for my wife's 14+ year war against brain cancer during which she exhibited many symptoms of dementia and I was a secondary caregiver for my MIL who had frontal temporal dementia for 20+ years. Both opted for home care their entire journeys and my wife's included the last two years in home hospice. I say this NOT to suggest it is the best option, just so you know what environment it was we conducted our caregiving in.

While I am NOT a medical professional in any manner, I have had lots of caregiving experiences and am happy to reply, answer questions, and suggest options if that would ever be of help to you.

I wish you courage and strength!