C Diff

Posted by TiaraDee @tiaradee, Jul 11, 2012

I first got sick on May 1st thinking it was the stomach flu. I weight 157lbs and every er that I went to told me to sleep it off and that the longest it could last is two weeks. Two weeks later no difference. I finally saw a gastroenterolgist sometime in June. At that point it was 1 month of no appetite, nausea and diarrhea with tons of mucus(sorry to be so graphic). I did a stool test and he said I had inflammation somewhere and to eat bland and it would go away. It didn't so finally he said I could have Giardia due to having yellow poop since march 🙁 so he put me on flagyl and ciprofloxacin. I guess I put all my eggs in one basket and hoped and prayed that would be it. I started feeling better until one day after I ate I had the urge to throw up. No nausea or anything. Finally had a colonoscopy on June 19th. Got diagnosed with C. Diff colitis. He put me on flagyl three times a day for two weeks. I had my good days and bad days. Fourth of july came around I had a hot dog and pasta salad and that's the last day I ate something delicious. Since that day I've felt horrible. I finished my antibiotics that Saturday and I've become worse. All I taste is blood now. Anything I drink makes me want to throw up. I have to sleep sitting straight up :(. I'm miserable and I currently weight less than 120. So to go from 157-120 in a matter of two to three months is taking its toll on my body. I'm losing hope. I'm 22 years old and Monday April 30th was the last time I was actually happy. If anyone has information or anything to help me please respond. I know I could have something way worse but to go from being perfectly healthy to being labeled anorexic because you want to eat but you can't is really hard. I'd love to hear other peoples stories on this horrible infection.

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itsohard | @itsohard | Jul 30, 2018

In reply to @itsohard "Hi, I thought I'd let you know that pure honey, cinnamon can help with probotiacs" + (show)

Hi Jamie. I use both. I had two days relief not long ago. My strategy:

One Table Spoon Honey/Cinnamon, 100 million Probiotics

Jamie, I am not comfortable sharing a lot of details about myself on here, because it is public. But, I don't mind sharing some details about me if that's OK. I am a mother of two boys, raised them on my own. I currently reside in my home state, KY. I work from home and have since 2001.

I currently relocated from another State, Michigan. During my stay there, I was trying to get help for my eldest son, who doctors said there was suffering from Crohns Disease. He kept getting worse. I moved back to my home state in Ky. and here we learned he had CDif. by the time we figured it out, I had been infected and started showing Signs of Cdif in Michigan. It was too late.

I was very angry, at this time, because I was told there are cures, but it's basically for rich people. Poor people who have been infected, thanks to Antibiotics and visits to some hospitals, are not able to get cured. We believe adamantly that my son contracted this condition after visiting a local hospital in Michigan. It was after his visit, the symptoms started.

So I am on a routine expenditure now to save my son's life as well as my own now. I fought for years to save his life prior to. Not only does he have cdif too, he also has diabetes and high-blood. So I am testing on my own a few ways to help.

I found relief after taking 100 million Probiotics, Cinnamon/Honey, and eating limited foods. Bananas helped too. Stay with nature's natural and finest is what I try to do.

My son and I ate Chinese food every single day for 2 months. That is all we could eat. Expensive. I ate mainly shrimp, not breaded, melons, fruits, and stayed away from most other types of foods. I did OK. But after a while, it started to affect me again, so I had to switch up. Now, I am working on eating mainly fruits, from natural sources only.

I've been struggling for a few months now, and had some success, even a few days without any symptoms at all!

lalaof7 | @lalaof7 | Jul 14 12:51pm

In reply to @tiaradee "That's why I want to go to mayo. They have docs that specialize in c diff..." + (show)

I’m new here. I had my first bout of c-diff June 3rd 2024 and was in the hospital for 5 days and so sick. I took vancomycin for 21 days along with Florastor. I had a colonoscopy on July 3rd and everything looked good.
Friday July 12 I woke up with the yellow, mucous, stinking diarrhea. Dr ordered stool test and it’s positive. I’m doing a Vanco taper and my dr wants me to have an Zinplava infusion.
This disease messes with your mind causing severe anxiety. I’m now on an antidepressant because I just can’t handle it anymore.
If you research it there is a connection between your mind and your gut. When your gut is out of whack it affects your brain.
I feel so bad for every person who deals with this disease.

lalaof7 | @lalaof7 | Jul 14 12:52pm

In reply to @humando "I believe that Cipro is one of the antibiotics known to cause c-diff. I wonder why..." + (show)

Only true treatments for c-diff are vancomycin and dificid.

johnwy | @johnwy | Jul 15 10:32am

I've had two treatments of vancomycin and one treatment of Dificid. My stool has still not returned to "normal" according to the Bristol Stool Chart. Does it ever return to normal?

JerryP | @jfperrone | Aug 10 10:15am

In reply to @sheilahd "I had cdiff lost a few month of my life and many pounds and thought death..." + (show)

Many people are interested in fecal transplants which seem to work very well. There is now a new FDA approved medicine called VOWST. This is made from fecal matter. Vowst is not a cure; it is designed to prevent a re occurrence of c diff. It has a 88% success rate. After a course of vancomycin, you take 4 pills first thing in the am; 3 days in a row.
I am currently taking the pills and will finish tomorrow. Time will tell,
check it out, they have a web site. ww.vowst.com