I really resonated with your feelings about being diagnosed with a chronic condition and dependent on IVIG infusions for the rest of your life! Sending a sympathetic virtual hug your way. I’ve just had my 3rd month of IVIG treatment and agree with the advice on pre-treatment with Tylenol, Benadryl and my Dr. added a medication called Cyproheptadine. My first infusion was 7 hours on Day 1 and the same on Day 2. I developed a multi day migraine afterwards. For the 2nd month I got a saline IV the day before, took the new med and pre-meds and my Dr. added a migraine medication to be taken at the end of the infusion. We also cut back to 1 seven hour day infusion. I do feel much better and the treatment seems to be working! It does take up a few days of every month and is life-disruptive, but the other 28 days per month I have less fatigue, pain and feel closer to life pre-autoimmune onset. Very few people understand what IVIG is, but since I am at a chemo center to get the treatment each month they equate it with that, and are more understanding as the months go by. Trying it for 3 months may be a place to start to see if it works for you. I sure hope so, and appreciate these posts as we are all in this together.