← Return to MGUS diet: Any tips on food to enjoy or prevent progression?

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@1oldsoul

I got the diagnosis of MGUS in 2021 but a couple years before that I had occasional but recurring days that I felt “off” and sometimes had to spend the weekend resting which was unusual for me. I still have those recurring days that I feel unwell, but I’m unsure if it is because there are way too many nights I don’t sleep well. When I was first diagnosed, I saw the hematologist every 3 months for labs, then the second year he changed it to every 6 months. I think you will find if your MGUS progresses as slowly as mine you will not be thinking of it as much. I keep a spreadsheet of my labs and so I can see at a glance how the numbers are changing. I also told my hematologist that I want to go in and have my blood drawn 1 week or two before I see him- which I can access on the patient portal- so I will have all my questions written down when I see him. Has your general practitioner run tests to rule out any other causes for feeling unwell such as blood sugar or heart issues? My MGUS numbers are relatively low compared to others. Are you seeing a hematologist? Did they give you some idea of where your numbers fall? I have not had a bone scan or bone biopsy because my numbers are low. Try not to worry because I was told the risk of progression is about 1% per year of it progressing to cancer. Taking small steps to improve your overall health I believe will pay off. I’m not sure if the Sloan Kettering Center is still accepting people for their plant based diet studies. I live too far away to participate.

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Replies to "I got the diagnosis of MGUS in 2021 but a couple years before that I had..."

Hello..thanks again for your feedback..spent 45 minutes with my GP yesterday…the time spent was very positive..the results from the Cleveland Clinic were…no Mprotein from 24 hour urine test, no kidney disease, not anemic, no reason for bone marrow scan..I’m very much an over thinker/analyzer and think some of my feeling is self induced..as MGUS is asymptomatic ..I’ve been too much of a couch potato and am planning to amp up my exercise and change diet to foods and drink with high antioxidants. I’m scheduled for follow-up at clinic in February. Going forward I need to think positive and stop thinking about it. My heart and BP are fine..glucose elevated…working to get that down.thanks again..have a great weekend ..Bob