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Artificial ileocecal valve surgery

Digestive Health | Last Active: Sep 5 3:27pm | Replies (6)

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@damardru

The University of Pittsburgh Medical Center does small bowel replacement (but you have to be very, very ill to qualify). Not sure what they do with ileo-cecal valves.
My ileo-cecal valve was removed 2001. Very healthy before removal. After removal I daily experience fatigue, flu-like symptoms - especially upon waking, 4-10 bms/day (mostly very loose and urgent) and live on a very limited diet of mostly white rice, avocado, sweet potatoes (Stokes are my favorite) and soup broth - - otherwise symptoms worsen. In 2001, I was 5' 10" and 150 lbs of muscle - today I am 123 lbs. I appear yellow in sunlight and have high bilirubin but the medical profession says its a red herring. Things that help: IBgard (OTC enteric coated peppermint oil); Visbiome (probiotic); herbal teas (elderberry, cats claw, nettles, echinacae, astragalus and several others); other items most naturopaths recommend; sticking to my limited diet; and keeping stress low (meditation helps). The road is challenging and there may not be anyone around you who understands - the ill ones have their own challenges and the healthy ones have a different focus. I wish you a quick and full recovery - - however - - if that does not happen - - I wish you strength and courage to bear your illness as best you can.

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Replies to "The University of Pittsburgh Medical Center does small bowel replacement (but you have to be very,..."

Have you tried to look into artificial surgery? Look up "nipple valve" or ileocecal valve reconstruction surgery on chat gpt. It does provide some information. I have a surgery consult with someone who specializes in intestinal reconstruction, but he has not specifically done this surgery. I am surprised that this surgery has not been done more, but I do not think it is common procedure to have your ileocecal valve removed. There is some limited research on surgeons that have done this surgery, but I am hoping that with advanced expertise and research that this surgeon I am meeting with can help me. Even with a referral from my GI, it will take me about 7 months to get in. I was able to meet with a surgeon fairly quickly with the Cleveland Clinic, but they were absolutely stupid, for a lack of better words. I am in Salt Lake City, and this surgeon is in this area. I am feeling somewhat hopeful for this procedure. It helps that I have the support of my GI in this.