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Thank you for sharing your story and your status today.
I'm sorry you have so much to deal with and it's remarkable how well you seem to be handling it. In reading of you description, I don't think I have fibro. Prob PMR even though the docs are uncertain I can't take steroids. They say that if the steroids help, that means you have PMR. I say "Rubbish!" Steroids help inflammation. Period. Not sure why they don't prescribe it for fibro actually.
Thanks for all the kind words and once again, for sharing. I wish for you peace, contentment and joy. So glad you've found coping mechanisms that work for you and keep you together.
Best to you. I know how hard you've worked instead of sitting there wringing your hands!
Replies to "Thank you for sharing your story and your status today. I'm sorry you have so much..."
Please be aware…I have been on prednisone for two months now! I have been diagnosed with PMR and Fibro….Rhuemy said this was PMR….no relief what so ever…..soooo, it is then Fibro……ESR’s are high with PMR, not with Fibro have had two blood tsts no change in ESR…..now we do the Fibro thing…..pain pills….gentle weights and stationery bike thing..very careful diet..(have ulcerative colitis anyway have to watch my diet always) I would take warm soaks but can’t get in and out of tub…so showers……I have just ordered infrared hand held gun….hoping this helps with the muscle, ligament, tendon pain…..forget sleeping..cannot nap in daytime and can’t sleep at night…I am 91 yrs old and have a myriad of other ailments…heart, arthritis,COPD…etc..etc…….sooooooooo that’s my story and I am sticking to it…..any and all suggestions more than welcome….take care and God Bless all….!!!!!!!!
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If your pain levels decrease on steroids, then yes, it means you have PMR. Steroids don’t work on Fibromyalgia as it isn’t an inflammation type of disease, whereas PMR is, even if your readings are normal. It was a year after my PMR pain started before my CRP and Sed Rate went up. One if the diagnostic steps for PMR is if your pain levels decrease with prednisone. You’ll know within 1-2 weeks. Kevzara can help, but injections are harder and cost is crazy, but you have to have a medically acceptable reason for not trying prednisone first. If you just refuse to take it, then it’s your choice to live with the pain. I personally will do whatever I have to go escape that pain, it’s been a crappy life living in that pain for 15 years. I took 5 years of prednisone and I’m now on Kevzara and my pain levels are getting better every day. I have hope again. But it’s your life and your choices.