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← Return to MGUS diet: Any tips on food to enjoy or prevent progression?
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MGUS diet: Any tips on food to enjoy or prevent progression?
Blood Cancers & Disorders | Last Active: Sep 3 4:57pm | Replies (137)Comment receiving replies
Good morning to you: really appreciate your taking time for me. Your feedback is helpful. Prior to the diagnosis—I was feeling unstable and just night right..but I thought whatever it is I will get a medication or treatment to correct it. Hearing that there’s virtually nothing..it’s hard to think that I’ll have this rest of my life…given this is 2024 and you would think a doctor somewhere will find something…my question is; how long have you had MGUS—what symptoms do you have—and how do you not think about it everyday?? For me it’s only been a week and it’s constantly on my mind.. furthermore I’ve been a couch potato too long and have to get my rear in gear re exercise and gain better eating habits…less sweets more fruits and vegetables and foods high in antioxidants..to combat the lessened antibodies. Overall I feel weak with less energy..I need to get my energy back..as of now it will be hard to walk one mile. Thanks again..appreciate any feedback you have. Bob
Replies to "Good morning to you: really appreciate your taking time for me. Your feedback is helpful. Prior..."
I got the diagnosis of MGUS in 2021 but a couple years before that I had occasional but recurring days that I felt “off” and sometimes had to spend the weekend resting which was unusual for me. I still have those recurring days that I feel unwell, but I’m unsure if it is because there are way too many nights I don’t sleep well. When I was first diagnosed, I saw the hematologist every 3 months for labs, then the second year he changed it to every 6 months. I think you will find if your MGUS progresses as slowly as mine you will not be thinking of it as much. I keep a spreadsheet of my labs and so I can see at a glance how the numbers are changing. I also told my hematologist that I want to go in and have my blood drawn 1 week or two before I see him- which I can access on the patient portal- so I will have all my questions written down when I see him. Has your general practitioner run tests to rule out any other causes for feeling unwell such as blood sugar or heart issues? My MGUS numbers are relatively low compared to others. Are you seeing a hematologist? Did they give you some idea of where your numbers fall? I have not had a bone scan or bone biopsy because my numbers are low. Try not to worry because I was told the risk of progression is about 1% per year of it progressing to cancer. Taking small steps to improve your overall health I believe will pay off. I’m not sure if the Sloan Kettering Center is still accepting people for their plant based diet studies. I live too far away to participate.
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Sorry just saw your last post..what is an IBS FLARE UP??