Connect
Comment receiving replies
glinda47, Bless you. I'm so sorry you are battling this. I can only tell you about my 29 year experience with Fibromyalgia & Chronic Fatigue. I am not familiar much with PMR.
Fibromyalgia is very painful. You can hurt all over during a flare and then just in certain places on other days. Your body can be sore to the touch and burn. Stiffness goes along with it as well. I move as much as possible because the less I move....the stiffer I get.
Chronic Fatigue tends to go along with FMS. It's not just fatigue....it's exhaustion. Mornings tend to be my hardest time of the day. I do nap if I need too....it helps. I take Natrol Melatonin 5 mg & Children's Zyrtec Liquid 2.5 ml at night and it helps greatly with my sleep. I have been a light sleeper all of my life. A lot of people with FMS tend to not sleep well.
My pain & fatigue tends to be worse in the humid & hot weather. Extreme weather change causes flares as well. Flares can last a day or several days to weeks.
I do not tolerate medication very well and cannot take NSAIDS. I have found that Flexeril 5 mg (Prescription)
helps me the most PRN. I also take Tylenol for pain. Epsom salt bath soaks, heat packs, Voltaren Gel and I get a monthly "gentle" massage. I may feel good one hour and crash the next with pain and fatigue.
The following go along with Fibromyalgia for me: Headaches/Migraines, Chemical Sensitivity, Food Sensitivity, Medication Sensitivity, Environmental Allergies, Thyroid Disease, Arthritis, Raynaud's Syndrome, IBS, just to name a few.
It's a very misunderstood malady because you look fine.
Pacing myself has been very hard for me as I am a doer. I have had to accept my limitations. My family, church & friends have been very supportive. My faith in the Lord keeps me going.
I am praying for you. I understand and empathize with a lot of your symptoms. Please keep me posted at what you find out. I care. Blessings, Prayers & Hugs...
Replies to "glinda47, Bless you. I'm so sorry you are battling this. I can only tell you about..."
Thank you for sharing your story and your status today.
I'm sorry you have so much to deal with and it's remarkable how well you seem to be handling it. In reading of you description, I don't think I have fibro. Prob PMR even though the docs are uncertain I can't take steroids. They say that if the steroids help, that means you have PMR. I say "Rubbish!" Steroids help inflammation. Period. Not sure why they don't prescribe it for fibro actually.
Thanks for all the kind words and once again, for sharing. I wish for you peace, contentment and joy. So glad you've found coping mechanisms that work for you and keep you together.
Best to you. I know how hard you've worked instead of sitting there wringing your hands!
For CFS I use high dose B1 and it’s changed my life. Google it.
Connect
I also have fibromyalgia with insomnia every night. How did you hear about trying Zyrtec? I assume you take the children's product because it's a lower dose? How much do you take and do you take it every night? I also use melatonin (every night) and Flexeril (as needed). Thank you.