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Tacrolimis and Minute Maid Lemonade
Transplants | Last Active: Aug 8 2:38pm | Replies (36)Comment receiving replies
No he's a regular PC DR. NOT FAMILIAR WITH TRANSPLANT PTS AT ALL.
SINCE HE'S MORE OR LESS FORBIDDEN TO GO TO IU/METHODIST THE HOSPITAL WHO DID THE SURGERY, WE ARE LOST AS TO WHERE TO TURN.
1. A HEPATOLOGIST?
2, GI/ ENDOCRINOLOGIST?
3.TRY AND FIGHT AGAINST THE NP WHO BANNED HIM FROM THE HOSPITAL WHERE HE RECEIVED THE LIVER.
I DIDN'T KNOW A NURSE PRACTIONER WAS THAT POWERFUL!!!
THEY PUT IT IN ALMOST KILLED HIM AFTERWARDS & NOW CHARTING MISSED APPOINTMENTS THAT WERE NOT MISSED. DON'T THEY HOLD ANY RESPONSIBILITY TO THE PT IN THIS STATE ?!!
Replies to "No he's a regular PC DR. NOT FAMILIAR WITH TRANSPLANT PTS AT ALL. SINCE HE'S MORE..."
Oh gosh, @sherry4always. I can see you have a difficult situation on your hands and you're spitting mad - or at least that's what I think the message in ALL CAPS means. Using all caps in an online forum usually denotes shouting.
It sounds like your husband needs the guidance of a transplant specialist. Currently, he doesn't have access to the team who performed his liver transplant at Indiana University Health Methodist Hospital. Have I got that right?
My suggestion would be to start by contacting the Office of Patient Expeience or Patient Advocacy at IU Health. I think I found the numbers for you here https://iuhealth.org/patient-family-support/rights-responsibilities/patient-advocacy
It is really important to get your question about Tacrolimis and the target range specific for your husband answered by a professional who knows his medical history. I hope you can get things resolved with the care team.
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Hi @sherry4always
I am so sorry to hear about your experience.
I had a kidney transplant so I am going to let a more experienced liver transplant patient respond to your question.
When did you have your husband have his liver transplant?
I think he is going to need a relationship with an experienced local Hepatologist that is familiar with liver transplant and the immune suppression meds that maintain the transplant, but I am not positive.
I am hopeful that a liver transplant patient may jump into this discussion.