Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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@researchmaven

Cuddle bug, I do a lot of what you do and thought I'd mention I start my day with Slippery Elm Inner Bark tea. It supports the mucosa.

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Thank you researchmaven! I was thinking about trying Slippery Elm, but was worried it coats the intestines so well that if I needed a laxative a day or two later (after the Elm not working), the laxative might not work either. One does worry a bit when you have intestinal blockages! I appreciate your comment.

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I should also add something else. I think most of my issues happen in the sigmoid colon, which at least is near the end of the colon. Certainly my entire colon is sluggish, due to the tortious nature of it. But it seems the ultimate issue is always down lower, and intestinal contents will move if the partial blockage near the end is relieved. Anyway, my internist happened to suggest using Fleet enemas to help this. Get on hands and knees to retain it as long as possible, hopefully causing it to travel up into the colon further than normal (at least past the rectal area). At least for me, it has solved many near nightmares (and pretty quickly, I might add). I keep them on hand, and always travel with them.

And I have an odd suggestion as well, based on experience, that might help someone. If you are female, vaginal sex would relieve a backup often. This can be done alone with props. For some reason it stimulates the colon which is right next to it. Not sure what would happen with back door sex (whether this be females or males), but its a thought.

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@001sarahsantana

I think you should consult again as I do not believe you should not be eating any cousins of the Fiber. Fiber can not be disolved in water (some of them) or easily digest by the body:

The fiber, a type of carb your body does not digest, is what makes these foods hard on someone with an inflamed colon. In addition to raw veggies and fruits, stay away from cooked kale, peas, winter squash, broccoli, Brussels sprouts, cabbage, onions and corn.

The reason I say this is because every doctor (an absurd amount of them) and gastro (3 of them) will first recommend Fiber. I was so desperate with the pain and bloating that I was eating apples with the peals and celery. Finally I was officially diagnose with Gastroparesis and fiber is an antagonist of Gastroparesis. My gut feeling literally was that if I would eat fiber or Metamucil or Fiber One or Magnisum or any product with capsules or microcristalline I would get swollen. What surprises me is that a number of doctor would recommend Fiber and Magnesium when at least Fiber should not be recommended before an Emptying Stomach Study (that should be protocol). I am saying this as a System Analyst. That is my particular case.

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Magnesium always helps me. It draws water into the colon but isn't classified as a fiber I don't believe. In any event, for other issues, I have to supplement with magnesium. I agree that one should stay away from anything related to fiber and I also agree that doctors recommend fiber which is most likely a bad idea for anyone who has what we all have. Oddly, onions make my system happy, which I'm sure isn't recommended. I do eat rice (low in fiber). I am pescatarian, so I eat a lot of vegetables (low in fiber, obviously). I appreciate your comments. I used to get bloated a lot before I knew what was wrong, but that doesn't happen much in the last few decades because I watch my diet.

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Yes, I just realized this week while making my own soup that for some strange reason Onion is helping me. I color them on the bottom of the pan for 10 minutes like if would start an Onion soup and it gives a beautiful color to the soup. So Onion is working... so far, I would have to see in my case how much it last.

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Try gluten free food or do not eat wheat and that could help bloating and wheat belly.

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@cuddlebug

I should also add something else. I think most of my issues happen in the sigmoid colon, which at least is near the end of the colon. Certainly my entire colon is sluggish, due to the tortious nature of it. But it seems the ultimate issue is always down lower, and intestinal contents will move if the partial blockage near the end is relieved. Anyway, my internist happened to suggest using Fleet enemas to help this. Get on hands and knees to retain it as long as possible, hopefully causing it to travel up into the colon further than normal (at least past the rectal area). At least for me, it has solved many near nightmares (and pretty quickly, I might add). I keep them on hand, and always travel with them.

And I have an odd suggestion as well, based on experience, that might help someone. If you are female, vaginal sex would relieve a backup often. This can be done alone with props. For some reason it stimulates the colon which is right next to it. Not sure what would happen with back door sex (whether this be females or males), but its a thought.

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Cuddlebug, Have you considered whether you have a rectocle prolapse? It sure sounds like one to me. Your sex tip sounds like the "splinting" that is often recommended for rectocle prolapse. Prolapse is completely separate from a redundant colon. Gastro doctors don't seem to think to check it. It is an easy check by doctors who focus on prolapse.

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@macy0723

Try gluten free food or do not eat wheat and that could help bloating and wheat belly.

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I tried gluten free and it bloated me the same because some contain cheekpea which is a grain with fiber

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I have a redundant colon and have had so much pain over the years (I'm 62 now and I remember pain as far back as 3rd grade). I've tried every diet I could read about, had every test and tried lots of treatments. Until 3 months ago, I was usually in bed by 4pm because the pain got worse over the day. Finally a GI doc prescribed Dicyclomine, 10mg. If I take a pill 30 minutes before eating I have no pain. I cry thinking about it because it has been such a long journey and finally something works! My understanding is that Dicyclomine relaxes the muscles in the colon from the effort of getting food through such a circuitous path. This in turn reduces cramping. Simple as that. I also take Mirilax to keep from being constipated, which can be a whole other problem for many people. I know this won't work for everyone but it's worth knowing about and maybe asking your GI doctor about.

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Hello,
I had a redundant large intestine, which caused constipation, no matter what I ate or how many caps of Miralax I used, typically four or more a day, I would get constipated and be in severe pain. I had my large intestine removed, except for the final 6 inches so I could have a rectum with control, that has been such a game changer for me and I wish I would’ve known about it and done it sooner. I think it is an individual issue and each person is different. Meaning what works for someone may not work for someone else. I had issues my whole life with this and after failing the SitzMark rings test twice And trying large amounts of Miralax and different diets, I decided to just go ahead and have the procedure. For me personally, it was one of the best decisions I’ve ever made.

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I have a redundant colon for the past six years. Constipation is rarely an issue. Standing is though. One twist is at my right hip bone and very painful when even normal bowel material passes through and I’m on my feet for more than 10 minutes, standing or moving slowly. Another spot must be near the vagina, as it happens there as well. I Have to sit way back in a chair or go lay down to take the pressure off. Sometimes I know it’s coming, but want to finish what I’m doing or at a store- if I take too long to move to a recuperative position, it’s so painful to walk or even in the act of lying down. Recently my left aide has begun to bother me. Wondering if this is yet more….
CT results this week to see.
Sigh

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