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← Return to MGUS diet: Any tips on food to enjoy or prevent progression?
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MGUS diet: Any tips on food to enjoy or prevent progression?
Blood Cancers & Disorders | Last Active: Sep 3 4:57pm | Replies (137)Comment receiving replies
Dear 1oldsoul: After reading your message, I’m impressed with your positive attitude and the results of your effort with diet and exercise. I’m 82 years old, still think I’m 40 …was diagnosed with MGUS just last week and have been down and out about it. Having more negative thoughts than positives. I much like you had feelings of being unstable, reduced energy and find myself sitting more just contemplating. I had CT scans, MRI , PET scan and finally blood work by neurologist that found all panels normal but Mprotein abnormal. Took a few more blood tests and a 24 hour urine test that I was told was very remarkable because it showed ZERO Mprotein. So as of now..I’m told..no Mprotein, no anemia, no kidney disease..I’m to see them in 6 months. To me I find it very unbelievable that in 2024, the medical field has found no medication or treatment to address this.. ie it’s not 1824. Bottom line I’m trying to find a diet that adds antioxidants —food and drink…going to change my diet and start exercising more. Are you saying you had symptoms but no longer have them? You are feeling normal?? I feel weak and zonked out…your positive feedback will help me tremendously …how long have you had MGUS?? Looking forward and hoping to hear from you soon. Thanks so much. Bob
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I forgot to mention in my reply that I was diagnosed with MGUS in 2021 by a gastroenterologist I was seeing because I kept experiencing IBS flare ups.
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Good morning @bigbob5461, so nice to meet you! I am like you in that my mind thinks that my body is still 40, but I think that works in our favor. There is so much science now on the power of positive thinking and I have always been one to challenge my body and tell it “you can do this.” With that said, I think there are very people at age 82 (or 70!) that can say they feel as good as they did at 40 so I think we should count ourselves blessed thus far. I have been dealing with insomnia for 4+ years so that is definitely a factor in my perceived health. But the neuropathy I initially experienced is gone and I have very few days of aches and pains despite having degenerative discs. Up until I developed plantar fasciitis last December, I was walking 3-4 miles every day. All my life I have loved walking and did it on weekends before I retired. About 6-7 years ago I decided to walk to the next town which was 12 miles round trip! I find that walking is wonderful for my mental health and gives me a sense of accomplishment. I am having to baby my one foot now that has plantar fasciitis. There is an active study going on at the Sloan Kettering Cancer Institute on a plant based diet to prevent or slow the progression of MM. Also I have seen some studies on the benefits of Curcumin. Last year my hematologist stated that my monoclonal protein numbers are much lower in comparison to most of his patients even though they have slowly been climbing and have not stabilized. He said he didn’t think it would ever progress to Waldenstrom’s or MM. I have consulted with 2 different naturopathic physicians and neither one could give me any answers on MGUS. I don’t have any other health issues and all my other labs look great so I’m gonna keep doing everything I can with diet, exercise, some supplements, prayer and trying to keep a positive attitude. If I can help you in any way, please let me know.