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Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?
Blood Cancers & Disorders | Last Active: 3 hours ago | Replies (19)Comment receiving replies
My first sign of Amyloidosis was increased protein in my urine….. Had a 24hr urine & had an abnormal amount protein & lots of blood tests from a local doctor with no conclusive answers…. My main complaint at the time was I was lethargic & leg aches. I then went to a urologist (on my own) who did my biopsy of my kidneys & the biopsy was sent to Mayo Clinic in Rochester, Mn. Confirmed the presence of amyloidosis…. The start of my treatment began…. My amyloidosis was in my kidneys & digestive tract, not my heart as many are…. Mayo did many tests on my heart…. Prayers For Answers & Treatment For God’s Best…
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@peggyjean I appreciate your comments. After 20 years of MGUS and then progression to Multiple Myeloma. I also have also now been diagnosed with Amyloidosis after a 3 year journey that started with protein in my urine. In addition to the confirmed kidney involvement, by biopsy, I am scheduled for a heart MRI. I was not aware digestive tract could be affected. Thank you for the heads up!