Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2 6:09am

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@cgs

Contact Loma Linda medical neuropathy clinic free video call they have testing and treatment with 90% improvement/ results
I'm going God willing.

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Could some one call me?

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In reply to @anitaxblack339 "Could some one call me?" + (show)
@anitaxblack339

Could some one call me?

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@anitaxblack339, Mayo Clinic Connect is an online discussion forum. There isn't a telephone option. How can I help?

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@mrterry

Three doctors wanted me to take statins. My cholesterol is a little high. I didn't take them. I may have dodged a bullet that could have made my pn worse. Thanks and the best of luck.

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Hello Mr Terry,

Thanks for your post. So far, I've been able to dodge the statin bullet, but I'm sure it won't be long before they start trying to push it.

Since the three bouts of Covid and a broken ankle, they've got me on a boatload of other stuff, so one day at a time.

Take care of yourself,
Jim

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Thanks I will. You also take care.

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@johnbishop

Wished it was that simple as only one drug/supplement being the best treatment for peripheral neuropathy. I'm no medical expert but it seems that there are a lot of different causes for neuropathy and no one treatment seems to help every possible cause. I think that is why there are so many different complementary and alternative treatments that have helped some folks but not everyone - https://www.foundationforpn.org/treatments/

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I take a supplement by Immunovites called NA R-Alpha Lipoic Acid 600mg USP. I searched and found this on YouTube from the Nerve Doctors. I know how neuropathy feels like and this works for me. I bought it from Amazon or Walmart. It works great!! I hope it helps you.

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I am very interested in your posting.Can you tell me a little more. Where to purchase this and is it in capsules. I’ve tried R-ALA before and it upset mu stomach. I would be most grateful if you could let me know all the details

John

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Here's my experience. I had high blood sugar my A1C was over 10. I read up about and decided to take action. I went on a keto diet and was also taking alpha lipoic acid. After about 6 months I lost 70 lbs and my A1C went to 4.7. Plus many other improvements like blood pressure as my doctor said fantastic. After 7-8 months I was walking on the floor and noticed I could feel my feet again the sensation of feeling individual areas of my soles returned. But after 2 years my toes were still numb so I did more reading and saw that acetyl-l-carnitine might help. Now at that time I also still had serious brain fog as they say and I'm a software engineer so I was seriously thinking I might need to find other ways to get income. But after just a couple of weeks that was gone but what also happened was the feeling in my toes came back and absurd leg cramps I was experiencing went away. I could start talking about coenzyme q10 but that's for another post. And frankly it makes sense since as you age you have less of these in you body. And since the safety of these is pretty good all I can say is it's probable worth a try. They worked for me and I'm amazed and happy with the results.

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I was taking alpha lipoic acid before I could really determine if it worked it started to give me heart burn that was unbearable so I stopped taking it. I was taking b12 with it as well. I replaced both with a product called Nervive that did nothing will not buy anymore of that. I will start back with the b12 I had not side effect from it and hopefully in time I will be able to determine if it work.. I am taking Pregabalin it was working as long as it was in my system the symptons are bearable they never go away. However now that does not seem as effective.

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I had a similar experience with R-Alpha Lipoic Acid. Can anyone verify that a qualified uK Neurologist has confirmed that taking R-ALA is beneficial for peripheral neuropathy. I see adverts, U tube endorsements etc. etc. confirming that R ALA definitely works but not once have I seen this product recommended by a UK neurologist. I want to see some real evidence. These products are expensive

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I have peripheral neuropathy in both legs which is very painful. My neurologist prescribed Baclofen for me and it works great. It is not a supplement but it works.

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