Has Anyone Been Totally, Truly Cured?

Good question… I believe there might be two types of Neuropathy. One is where Neuropathy is a byproduct or symptom of something else, and if known what the cause is, the “cure” may exist if that underlying condition is able to go away.

I think the second type is where most of us fit in, where Neuropathy itself is a permanent condition because no underlying cause is known or if it is known, is permanent damage that can’t be “cured”. So you’re right, we seek the best solutions for strength and relief from our knowledgeable peers. What I like is how many people here can smell the snake oil products of people preying on us & our hopes, and try to help divert us from throwing away money unnecessarily. But even with the “good” products and therapies, it’s not a cheap condition is it?

@dbeshears1
Mine was caused by an autoimmune disease that damaged the nerves. The disease is no longer yet the nerves are damaged. They will not heal, ever.

As far as expenses, I only use ALA and a lotion on occasion. Yes, that is costly.

I have taken other RX for another condition that cost me $400./mo. That’s with insurance!

what does ALA stand for?

ALA is Alpha Lipoic Acid

Hello, @SusanEllen66

I know of no known cure, at least not for the sort of neuropathy I have, which is idiopathic predominantly large fiber polyneuropathy. I have come to accept that the best––and, frankly, the only––thing I can do is learn to manage the symptoms of my neuropathy. I'm fortunate not to have pain; I'm at the mercy of an unsteady balance, which results in difficulty walking. The only medication I'm currently taking, at the suggestion of my neurologist, is a prescription-only 'medicinal food' called EB-N5, which I've been taking for about a year. Many here have asked me if EB-N5 has helped me, to which I've had to answer, honestly, I don't know. I don't believe it has harmed me, and my most recent EMG (last fall) showed that my neuropathy had not progressed. I take comfort in that.

I wish you well in finding answers!

Cheers!
Ray (@ray666)

Your reply was 100% accurate. There are too many snake-oil salespersons trying to take advantage of folks with this syndrome.,

@SusanEllen66 I can't imagine a true cure for peripheral neuropathy exists that could help 25 million people. There would be huge profits a drug company could make rolling out that magic pill. So, I assume, for now, it doesn't exist. Based on that, all we have are things that might help in coping with PN. Might. I've been taking ALA and then R-ALA for 2 - 3 years. Does it help, who knows. I take other supplements as well based on a suggestion by my neurologist. To slow down progression is a plus in the win column. For now, I think that is the best we can hope for until someday, that magic pill comes along to regenerate damaged nerves. Ed

Based on extensive literature I have read and discussions with medical experts, there is no known cure for neuropathy once the nerves are damaged. There is hope if the initial cause can be addressed, i.e., diabetes, some autoimmune diseases, spinal compression, etc. If the cause cannot be determined, the best we can hope for is medicines that can block the pain and discomfort associated with this nerve damage.
So many charlatans are promoting their 'cures'. Don't fall for it!! The best one can do is to see a neurologist to sort out the cause and make a correct diagnosis. Once diagnosis is made, there are some prescription drugs that can help block the pain receptors, in your brain, so not to feel so uncomfortable, but not cure. It is a matter of trial and error, but a good specialist can guide you through the journey.
I have finally, after two years, trying different medications found one that has helped me, Nortriptyline (generic name) , an old anti-depresssant, which as a side effect, is used for nerve pain. All medicines do not help everyone! We all have our own chemistry and our body reacts differently.
Good luck! Find a neurologist~~

Totally agree. My stance now is just to decrease the pain so that my life can be great. If someone does find a cure for my idiopathic neuropathy, I will be first in line.
Good thoughts and prayers to all who suffer.

I've been using Nooro, and it calms my nerves for a few hours. Has anyone heard of or used Rapamysin?
Barb