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Anyone else find the side effects of Hydrea 500MG frightening?

Blood Cancers & Disorders | Last Active: 4 days ago | Replies (156)
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@loribmt

Hi @jacklyn Wow, I’m so happy to read that you’ve been feeling great since starting the hydroxy and had a great vacation with your son! I remember you being so worried the first time we talked about starting the hydroxy. So glad this is working out for you. ☺️

I’d like to encourage you not to get so focused on life span for someone with CMML. Just live life without an end date! Or as I like to say, Live like they left the gate open! LOL.

According to an article from Penn Medicine, “Many chronic myelomonocytic leukemia (CMML) continue to live full lives after their diagnosis and are minimally affected by their disease.” Here’s the full article. https://www.pennmedicine.org/cancer/types-of-cancer/leukemia/types-of-leukemia/chronic-myelomonocytic-leukemia

Good luck on your blood work tomorrow! Let me know what you find out, ok?

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Replies to "Hi @jacklyn Wow, I’m so happy to read that you’ve been feeling great since starting the..."
jacklyn | @jacklyn | Aug 7 10:43am

Thank you for such a great article. You are right. I am tolerating hydroxy and have more energy than I have had in a long time. I also had to get off my Symbicort inhaler that my pulmonologist put me on when I was hospitalized last December for pneumonia. He agreed with my oncologist that I should come off of it. I ended up having anxiety the first week of my vacation and found out it was a side effect coming off Symbicort. Happy that is done and my breathing is fine. I mean I get out of breath at times but I am 76.
I will let you know my results today. There were a lot of sick looking people in the Oncology ward this morning. I said a prayer for all of us. I am blessed so far. Talk to you soon Lori. Thanks again.

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jacklyn | @jacklyn | Aug 8 11:06am

Hi Lori:
My oncologist is happy with my results. My hemoglobin is 11 went up my white count is now down to 6 and my platelets 98. I was concerned about my platelets coming down however she said she isn’t. She also said all my other blood work is good. She seems surprised. I asked if I could lower the dosage but she said no keep It the same. I am afraid my white count now will go too low. lol. Anyway I go again for another blood test 2 weeks. She is keeping a close watch on me.

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