← Return to Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

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@mahen

You could have a bone marrow biopsy. I would ask for your Dr to do a blood test that checks light chains, and urinalysis to check for protein in the urine. I have amyloidosis. It was explained to me they would have to get the exact area of the heart. I also had an equivocal PyP, I then had a cardiac MRI and a strain echo of the heart. I have minimal amyloid in my heart and am receiving treatment.

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Replies to "You could have a bone marrow biopsy. I would ask for your Dr to do a..."

Thank you,
Thank you, Thank you!!!
You have given me answers that I have looked for and needed. Last Friday, I asked my heart Dr to do a biopsy on me. She said no, and said she was going to do another PyP scan in 6 months. I wanted to flip on her. She wouldn't budge. But then, this is the Dr who said I was just fine 6 months ago and said I didn't need any testing and that I should have many years left. Then 6 months later she does a turn about. My personal Dr said for me to try goi g thru my heart Dr. But he also said that if she would not have biopsy done, that he would see that I got one. Thank you for suggesting what other tests I should have done. I am being treated for heart failure. My afib was surgically corrected. I have unexplained shortness of breath, along with Graves Disease. I had bilateral carpal tunnel syndrome, which was surgically repaired. I am now starting to have neuropathy reay bad in my rt leg, alo g with joints in hand getting ready bad at times with swelling and pain. I could go on, but I think you get the picture. I think all of this is a result of me having covid really bad in January of 2020. As you know, covid was still being denied by Trump and his administration then, until everything was shut down in March 2020. A year and a half later I started getting heart problems, and things continue on a downward spiral since then.
Thank you so much for taking the time to respond to my message .
I hope you are doing well. I live in northern Mich. I will let you know what happens after I have biopsy and a few other tests. Your input means the world to me right now. Thank you for helping a stranger. I will try to pass it on!!
-Sue Rae