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Anyone else find the side effects of Hydrea 500MG frightening?

Blood Cancers & Disorders | Last Active: Oct 20 6:16pm | Replies (139)
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@jacklyn

Hi there: can I ask how old you are and what dosage you are taking. I have been diagnosed with CMML and I am 76 and my doctor put me on hydroxy 2(500)mg after my white cell count was 50. After the first week my count came down to 24. Second week it came down to 14. My oncologist couldn’t believe my blood tests and how good everything was. It has been 3 weeks now and I go for blood work tomorrow. I went on vacation. I have never felt better since being on this drug. I hope they lower the dosage.
I have more energy now than before. I did read the life span of someone with CMML is 20-30 months. How long have you had CMML.

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Replies to "Hi there: can I ask how old you are and what dosage you are taking. I..."
Lori, Volunteer Mentor | @loribmt | Aug 7 9:08am

Hi @jacklyn Wow, I’m so happy to read that you’ve been feeling great since starting the hydroxy and had a great vacation with your son! I remember you being so worried the first time we talked about starting the hydroxy. So glad this is working out for you. ☺️

I’d like to encourage you not to get so focused on life span for someone with CMML. Just live life without an end date! Or as I like to say, Live like they left the gate open! LOL.

According to an article from Penn Medicine, “Many chronic myelomonocytic leukemia (CMML) continue to live full lives after their diagnosis and are minimally affected by their disease.” Here’s the full article. https://www.pennmedicine.org/cancer/types-of-cancer/leukemia/types-of-leukemia/chronic-myelomonocytic-leukemia

Good luck on your blood work tomorrow! Let me know what you find out, ok?

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