← Return to Reclast Infusions: Side-effects & Recovery time

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@lindawickert

Hello All,
I thought I would add my experience with the Reclast infusion. First a little background on my medical history. I have a few autoimmune diseases including Hashimoto’s and vitiligo. I also have IBS-C which I control with my diet, and I was diagnosed with stage 1 breast cancer in December 2023. I had a double mastectomy, and I did not need chemo or radiation treatment. I also opted not to take any ongoing medications. During the timeframe of my breast cancer diagnosis, they thought it was a good idea to do a new scan and discovered I had moved from osteopenia (was -2.2) to osteoporosis (-2.5). This was not a surprise to me as my mother had osteoporosis and I’ve had several siblings diagnosed with it as well. My mother had taken Fosamax for over 20 years so I tried that first but ended up with never-ending heartburn. After discussing my options with my endocrinologist, he suggested I try the Reclast infusion. After reading all the horror stories on here, I rescheduled the infusion 3 times before finally deciding it was my best option for now. I normally drink 60 + ounces of water every day so being hydrated wasn't an issue but to be extra sure I drank 96 ounces that day before my appointment and I brought my water bottle with me to the appointment and drank while the infusion was taking place. I also took two 500 milligrams of Tylenol 30 minutes before my appointment. The infusion was 20 minutes long and the flush was 5 minutes. I thought about asking for the infusion to be changed to 60 minutes but after the nurse stated he had not heard of patients having issues after the infusion, I decided to give the 20 minutes a try. That evening, I drank another 24 ounces of water and felt fine. The next morning, I felt a little off but decided this was the side effects of the medication. As the day wore on, I began to experience more and more flu-like symptoms (achy joints, headache, tiredness). I took ibuprofen about every 5 hours but that really didn’t help. Sunday morning, I was feeling a bit better but not 100%. By Sunday evening my joints were better, and my headache was improving but I was extremely tired. Today is Tuesday and other than being tired, I’m back to normal. I’m not sure I’ll do this infusion again. I feel like there must be better and more natural alternatives so I’m going to continue to do more research. Has anyone tried a natural remedy that they know works (i.e. your scan has shown improvements)?

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Replies to "Hello All, I thought I would add my experience with the Reclast infusion. First a little..."

@lindawickert your DEXA score is borderline at -2.5, , and you might benefit from Keith McCormick's book "Great Bones," which updates and expands on his first book, "A Holistic Approach to Osteoporosis." He also does consults in person or by phone and has videos online. He advocates for medication when needed but last time I looked his idea of when meds are needed may be around -3.3 DEXA if bone quality is good. Of course there are other ideas out there about when meds are needed! I have seen everything from medication for osteopenia to McCormick's -3.3 but it is an individual decision based on individual factors in consultation with a doctor you trust. These murky areas are hard!

Some on this forum are doing a trabecular bone score for bone quality and also using the FRAX score (you can look it up), I don't personally know much about these because my scores were a lot lower than yours and I have fractures so my bone quality was obvious!