Hi to jeangreer,
I especially understand and relate to your fatigue, mine is almost constant. Only time I’m fairly comfortable is when I’m in bed, reclining. Its where I attend to my paperwork, phone calls— all the stuff of life, especially when one lives alone. And I even eat in bed!
Sorry you’re having very hard time with shortness of breath. Has anyone suggested a form of easy breathing
excersises- similar to those given to fearful flyers to promote a degree of relaxation? The motivation problem is also a tough one. Hard to “get going” when you’re not steady on your feet and are exhausted before
you begin. Yet we all know how central it is to “ move our muscles”. Even for very short amount of time. Boosts our self-regard, helps to feel like we’re part of rest of the world. I believe some insurance provides at home physical therapy. Thank you for replying to my post. Wish you have some comfortable periods of time.