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PKD kidneys removed at time of transplant

Transplants | Last Active: Aug 6 6:59pm | Replies (44)
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@kidneybean1

Jolinda
So happy for you. I am 69 and live in NY. I have grossly enlarged polycystic kidneys. My egfr is 36. My nephrologist says I should get a live kidney donor transplant in 2 years. I want Dr. Prieto to do transplant. How do I start process with Mayo Rochester or is it too soon? I also have grossly enlarged polycystic liver disease but function is normal. Pain is manageable.
Thank you for any advice you can give me.
Jessica (kidney bean)

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Replies to "Jolinda So happy for you. I am 69 and live in NY. I have grossly enlarged..."
Ginger, Volunteer Mentor | @gingerw | Aug 6 6:59pm

@kidneybean1 Jessica, here is a link to the transplant center at the Rochester campus: https://www.mayoclinic.org/departments-centers/transplant-center/home/orc-20203891

My suggestion is to contact them and see how best to proceed. Have you been evaluated for transplant already? It is not a simple process. If you have a live donor in mind, have they been evaluated, yet?

As an end stage kidney disease patient, I know things can change in an instant. What you don't want to do is be left "holding the bag" so to speak. Get your information from the transplant center and move forward with your plans.
Ginger

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