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Hypopharyngeal cancer: Anyone treated with proton radiation?
Head & Neck Cancer | Last Active: Dec 17, 2022 | Replies (94)Comment receiving replies
I had cheek cancer three years ago, and was treated with surgery and radiation. At that time, proton radiation was not available in my area. My sister, had tongue cancer 17 years ago at the Mayo Clinic in Scottsdale. She had no radiation. In December, she had jaw bone cancer removed at the Mayo, by the same doctor, who I will call doctor H. I was there with my sister, and had the opportunity for doctor H. to review my case. The one thing he told me is that you can remove cancer, but you cannot get rid of radiation side effects. My recommendation is to have a second opinion about radiation. I know that in some cases, depending on the cancer and the stage, you cannot avoid it. But you know, I can deal with dry mouth, lose of teeth, recurring mouth infections, lose of thyroid function. They only remind me of my humanity, and have made me more aware of being more caring for others.
Replies to "I had cheek cancer three years ago, and was treated with surgery and radiation. At that..."
Did you loose your taste with radiation?
i DID NOT HAVE RADIATION BUT NOW HAVE SEVERE DYSPLASIA AND LICHEN PLANUS. DOCTORS DON'T KNOW
WHERE TO GO FROM HERE. PRAYING FOR WISDOM FOR ME AND THE DOCS. MY DOC MOVED TO BOSTON AND
SAID THE SEVERE DYSPLASIA HAS TO BE REMOVED, WHICH IS A LOT.
what is the sugar content in milk shakes and custard. raw baby kale, split pea soup, Budwig Protocol is like a milkshake
and is theory on cancer treatment. The doc. told me to put Gavison antacid on the lichen planus to coat it.
I wonder if the doctors at Mayo in Scottsdale Arizona can help.
I don't worry too much about the sugar content ... probably should but some sugar is inevitable I think. I can eat yoghurt now but can remember a time when even that was too acidic. I know some people can't eat milky foods but they have been very soothing for me. Most really soft vegetables are good too. Potato, pumpkin, sweet potato, carrot ... I mash spinach in with them and cover in gravy or butter. It's very difficult when a lot of your mouth is affected. I hope you can get some answers soon.
Hi @alpaca ! I just joined Mayo Clinic Connect, and am scrolling through this "head and neck cancer" thread as I have been through six bouts of oral cancer over the past 10 years. I'm curious about your botox in your lower lip. I have the same problem with mine. Does insurance cover the botox or is it considered "cosmetic"? I know all insurance is different, but I am curious! Thanks!
Hi Adrienne. i am in New Zealand - no insurance issues. I now get Botox at a Procedures Clinic where they use it for laryngectomees for their stomas and other people who need it for clinical reasons. The Botox is in my parotid glands to lessen the saliva that dribbles out of my limp lip. I have to balance it carefully to avoid dry mouth and thrush. I've had three bouts over 10 years. Bit of a veteran now!
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I had a skin graft from my thigh, to repair the arm flap for my cheek. So I guess a skin graft is just a piece of skin and the flap includes flesh and veins, though I am not sure.