Having lobectomy tuesday aug 6---so confused. nobody answering my ???

Posted by julie67 @julie67, Aug 4 11:48am

So I was on here with my PET scan a few months ago. The doctor has said my cancer is 'small' and have a good chance of 'cure' if it's not in my lymph nodes. They biopsied my lymph nodes and they came back negative. So why would they take 'good' lymph nodes and he also said he is doing a lobectomy instead of a resection because it has 'less chance of lung collapse'. IS this normal? I had a collapsed lung on the lung biopsy July 2 and spent 2 days in the hospital then so why is it a big deal? Or was I lucky? I also thought they collapsed your lung to begin with for this? YEs, i am all over the place. I am alone with not even a ride home when time comes. Nurse gave me social worker, Cancer PAthways (anyone heard of them?) and other resources. NOBODY can help. So I told Cancer Pathways here in Evansville, IN I have no help, animals to attend to, nobody to go to store and no money when I get home. She called back and left a message that she called my nurse navigator and was told I would only be in hospital 2 days and would be able to do 'my normal things' when I got home! HA! So I then fired off an email to the nurse telling her this when it clearly states in my letter I am not to drive until seen post-op//whenever that is??? Not to lift etc but to walk every day when i get home. Of course nurse didn't answer me now since if she DID say this, she knows its WRONG and she just robbed me of any help. Mad, scared, freaked out so bad a week ago i am covered in cuts and chunks out of skin from being so clumsy. Anyway, just still lost. My chart says resection AND lobectomy, it also says in ONE letter THORECTOMY? Guess it depends on what he finds?? But doesn't he know what to do from all my scans already? And if they aren't sure if it's in my lymph nodes after a PET AND biopsy, then how do we know if it ever comes back (supposing I AM cured after removal of lobe and whatever nodes he takes come beck negative)? rambling, confused, alone and freaking out again. 8am tuesday. having nightmares now. please tell me yall think please? I have to do this surgery I think. I've had my primary, future oncologist (oh, he said I need chemo no matter what!--another opionion oncologist said only if lymph nodes taken are cancerous!) and someone else say to get the cancer out now!

Interested in more discussions like this? Go to the Lung Cancer Support Group.

I had my upper right lobe removed 5 1/2 years ago at age 73. It was easy-peasy!!! No trouble at all and went home in two days. The tumor was about the size of a golf ball and just small enough that I didn’t even need chemo. I hope that will be your situation. I have had no issues since then but get an ultrasound once a year.

Sorry you are troubled. I am sure you will do well with only one big regret that being you spent a lot of your time worrying and not just living life.

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Just trust your doc in terms of the surgery. You can’t manage that and you have things you need to care and plan for.
A thoracotomy is just the surgical procedure to cut through ribs and pleura and access the lung in order to remove the section of lung (the lobe) they are after. You had a collapsed lung before as part of biopsy if i understood correctly so they will do a lobectomy . Both right and left lungs have something similar to seams dividing each lung into lobes - making it easier take out the part with a tumor in it. And they always take a number of nodes that may or may not be negative. They test them to reveal whether the cancer is moving to other areas.

When i had a lobectomy I was discharged on day 4’when they could remove the tube draining fluids. I would just ask nurse to clarify expected discharge and whether they are sending you home with the drain still in place.

I would suggest you tell nurse you need a Case Manager to help obtain approval for help for a few days to help with bandaging and . The case manager can also refer you to organizations that can help with food and transportation.

That's about all I can offer. Fight for a case manager - otherwise you cant get there and back so won’t be able to have the surgery. And make sure they know you have no one to help at all.

Finding someone to help with your animal is on you. Good luck.

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Hi, I had a robotic lobectomy (left lower lobe) on 9/20/2023. I was lucky that my lymph nodes were negative, so no chemo or radiation. No complications at all, and was out of the hospital after one day. Although I had my husband and some of my kids at home to help, I did not need any help. We didn’t know how I would be feeling, or if I would need the help. My only side effect was a constant cough, but they want you to cough afterwards. No pain coughing, which was a blessing. Now I go for a CT scan every 6 months for the next 3 years. I definitely consider myself blessed!
Best of luck to you! I am sure your surgery will be successful!

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@julie67 , Having surgery under any circumstances is extremely stressful. What you are feeling isn't unusual, but it is heightened due to your life situation. Pam's advice is good. A case manager may be able to help. Depending on the hospital policy, you may not be assigned a case manage until you are admitted. That team may not be under the same umbrella as the surgeon's office.
Wishing you the best tomorrow, I'll be thinking of you.

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@lornal

I had my upper right lobe removed 5 1/2 years ago at age 73. It was easy-peasy!!! No trouble at all and went home in two days. The tumor was about the size of a golf ball and just small enough that I didn’t even need chemo. I hope that will be your situation. I have had no issues since then but get an ultrasound once a year.

Sorry you are troubled. I am sure you will do well with only one big regret that being you spent a lot of your time worrying and not just living life.

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Welcome to Mayo Connect @lornal, thanks for jumping right in and helping! It's encouraging to hear of your successful surgery. Wishing you many more years of clear ultrasounds!

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I know it’s difficult not to worry. It’s good that nodules not cancerous. Full lobe removal is prudent. Usually 2-3 days in hospital post surgery. Pls talk to hospital social worker who can arrange all types of assistance, including transportation and home help. (I do not think that hospital will release you without appropriate post op care.)

My husband’s thoracic surgeon did full left lower Lobectomy for his tumor. He stayed in hospital only 2 nights. He saw oncologist after surgery, he did 4 rounds of chemo, and now doing immunotherapy.

I know it’s happening so fast, but be glad that your surgery is scheduled right away. In hospital walk asap, and do spirometer for breathing. It’s also great that oncology is advanced now to help prevent and monitor for any future pesky cancer.

BEST WISHES. LET US INOW HOW YOU’RE DOING. IT HELPS.

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@diana5

Hi, I had a robotic lobectomy (left lower lobe) on 9/20/2023. I was lucky that my lymph nodes were negative, so no chemo or radiation. No complications at all, and was out of the hospital after one day. Although I had my husband and some of my kids at home to help, I did not need any help. We didn’t know how I would be feeling, or if I would need the help. My only side effect was a constant cough, but they want you to cough afterwards. No pain coughing, which was a blessing. Now I go for a CT scan every 6 months for the next 3 years. I definitely consider myself blessed!
Best of luck to you! I am sure your surgery will be successful!

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Wow! I am pea green with envy. I didn't have robotic surgery and also had clean margins and nodes. But I had copius drainage after they removed the chest tube and even after they sent me home. So i really needed some help for a few days to change my dressing because i couldn't quite reach it.

Everyone has a different experience -

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@julie67, even with the continuing wonderful advances in lung cancer detection and treatment, it's not an exact science. Those CAT scan images are pretty fuzzy, and PET scans are designed to show sugar absorption. None of those images are crystal clear, so your doctors won't really know what you've got until they see it.

My tumor was a little bigger than they thought and closer to the bottom of my right upper lung lobe. I had robotic surgery and went home two days later. No problems there. Unfortunately, the cut line showed cancer cells, plus a nearby lymph node had also been infected, so I had chemo and radiation simultaneously. Still didn't miss a single day of my desk day job until I got laid off the same day as my third round of chemo. But that's another story.

I was a little stiff after the surgery, but I didn't much notice even that after a month. I know it's a whirlwind, but quickly removing the cancer is your best chance for survival. Best of luck!

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@abob

I know it’s difficult not to worry. It’s good that nodules not cancerous. Full lobe removal is prudent. Usually 2-3 days in hospital post surgery. Pls talk to hospital social worker who can arrange all types of assistance, including transportation and home help. (I do not think that hospital will release you without appropriate post op care.)

My husband’s thoracic surgeon did full left lower Lobectomy for his tumor. He stayed in hospital only 2 nights. He saw oncologist after surgery, he did 4 rounds of chemo, and now doing immunotherapy.

I know it’s happening so fast, but be glad that your surgery is scheduled right away. In hospital walk asap, and do spirometer for breathing. It’s also great that oncology is advanced now to help prevent and monitor for any future pesky cancer.

BEST WISHES. LET US INOW HOW YOU’RE DOING. IT HELPS.

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Good to see your post. Hope you are both well.

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