Hello @nzq21p —

Never feel you need to apologize for asking questions. This is a rare cancer and it can be hard to find information. I have asked a lot of questions myself.

I did not have genetic testing. Samples from my biopsy and the hysterectomy did have testing to determine the exact gene mutation which led to the final diagnosis. My understanding is there are a few ideas about what might predispose someone to have ESS HG yet is it is very difficult to determine the root cause.

No pain prior to the diagnosis. Like you, I felt terrible after being diagnosed. I’m sure it was all the stress and anxiety. A cancer diagnosis is a very traumatic event!

You are not alone in feeling terrified, especially right after getting a diagnosis. There are so many uncertainties and everything feels overwhelming. Keep asking questions and look to your support network as you move forward. Be kind to yourself. Prayers and positive thoughts headed your way.