My recovery time was only about two months. It was major surgery due to the size of the spleen.
The surgery was in November and I was back to cross country skiing in January the next year.
Of course, without a spleen, I have to be more cautious about getting a bacterial infection. I usually carry a bottle of antibiotics with me, and if I have a significant wound or injury I can use the meds
Two months is a remarkable recovery time from such a major surgery and you’re remarkable for getting right back on your feet and hitting the ski trails!
I knew that it’s possible to live without a spleen but wasn’t certain about the precautions one needs to take to keep healthy. Thanks for sharing your experience! Won’t be long now and you’ll be back out in the snow!
My recovery time was only about two months. It was major surgery due to the size of the spleen.
The surgery was in November and I was back to cross country skiing in January the next year.
Of course, without a spleen, I have to be more cautious about getting a bacterial infection. I usually carry a bottle of antibiotics with me, and if I have a significant wound or injury I can use the meds
Bmisslich, recently diagnosed w/ smzl and have a choice bw Rituxan and splenectomy and am leaning towards splenectomy. Why did you choose that over Rituxan? Thank you, L
Bmisslich, recently diagnosed w/ smzl and have a choice bw Rituxan and splenectomy and am leaning towards splenectomy. Why did you choose that over Rituxan? Thank you, L
Dont let them wait and watch. Seek another opinion. The first dr I went to said the same thing. I decided to go to MDA and the dr said no to wait watch. It needs to be treated. My spleen was 21 cm. After rituximab is has now shrink to 11 cn.
Dont let them wait and watch. Seek another opinion. The first dr I went to said the same thing. I decided to go to MDA and the dr said no to wait watch. It needs to be treated. My spleen was 21 cm. After rituximab is has now shrink to 11 cn.
Hi. Also went to MDA Houston, Dr. Chihara. He doesn’t like splenectomies, mainly Rituxan. Were you given idea how long PFS? How was your labs post-rituxan? I have low platelets/lymphocytes/IGG rn and concerned Rituxan could bring latter two down lower. Am mulling over this study rn… https://acsjournals.onlinelibrary.wiley.com/doi/full/10.1002/1097-0142(20010115)91:2%3C294::AID-CNCR1001%3E3.0.CO%3B2-W#:~:text=BM%20infiltration%20ranged%20from%2010,patients%20showed%20an%20unmodified%20picture.
Two months is a remarkable recovery time from such a major surgery and you’re remarkable for getting right back on your feet and hitting the ski trails!
I knew that it’s possible to live without a spleen but wasn’t certain about the precautions one needs to take to keep healthy. Thanks for sharing your experience! Won’t be long now and you’ll be back out in the snow!
Hi Lori, are you able to share my email with bmisslich? Would love to say hello to her if she isn’t too busy, ask her about doctor’s decision-making. Thank you
I was diagnosed 2 years ago although it started in 2019. It is an indolent cancer but my platelets are hanging in around 95 but my spleen is getting quite large. I get blood work every 6 months and am told if I start to feel crummy, then obviously go in. It is constantly on my mind. There is a trial going on at Mayo Clinic in Rochester Mn and my oncologist said it would be a game changer for the likes of us. Fingers crossed.
Hi Lori, are you able to share my email with bmisslich? Would love to say hello to her if she isn’t too busy, ask her about doctor’s decision-making. Thank you
Hi @lila1 You should be able to message @bmisslich directly by clicking on her avitar (photo icon) where you can view their profile. Once you’re on that page, under the avitar is a prompt that says, Send Private Message.
You can also type @bmisslich in any reply to tag them. Have you tried a private message?
Hi. Also went to MDA Houston, Dr. Chihara. He doesn’t like splenectomies, mainly Rituxan. Were you given idea how long PFS? How was your labs post-rituxan? I have low platelets/lymphocytes/IGG rn and concerned Rituxan could bring latter two down lower. Am mulling over this study rn… https://acsjournals.onlinelibrary.wiley.com/doi/full/10.1002/1097-0142(20010115)91:2%3C294::AID-CNCR1001%3E3.0.CO%3B2-W#:~:text=BM%20infiltration%20ranged%20from%2010,patients%20showed%20an%20unmodified%20picture.
My hematologist/oncologist at Mayo just asked if I would be part of a trial for splenic marginal zone low grade B cell Lymphoma/Leukemia - what a mouthful! Apparently, most cases are in MN and they are trying to find out why.
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Two months is a remarkable recovery time from such a major surgery and you’re remarkable for getting right back on your feet and hitting the ski trails!
I knew that it’s possible to live without a spleen but wasn’t certain about the precautions one needs to take to keep healthy. Thanks for sharing your experience! Won’t be long now and you’ll be back out in the snow!
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1 ReactionBmisslich, recently diagnosed w/ smzl and have a choice bw Rituxan and splenectomy and am leaning towards splenectomy. Why did you choose that over Rituxan? Thank you, L
I was diagnosed last december with smzl. I had 4 treatments of rituximab and my spleen shrunk vack to 11 cm. I am feeling good now.
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1 ReactionDont let them wait and watch. Seek another opinion. The first dr I went to said the same thing. I decided to go to MDA and the dr said no to wait watch. It needs to be treated. My spleen was 21 cm. After rituximab is has now shrink to 11 cn.
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1 ReactionHi. Also went to MDA Houston, Dr. Chihara. He doesn’t like splenectomies, mainly Rituxan. Were you given idea how long PFS? How was your labs post-rituxan? I have low platelets/lymphocytes/IGG rn and concerned Rituxan could bring latter two down lower. Am mulling over this study rn… https://acsjournals.onlinelibrary.wiley.com/doi/full/10.1002/1097-0142(20010115)91:2%3C294::AID-CNCR1001%3E3.0.CO%3B2-W#:~:text=BM%20infiltration%20ranged%20from%2010,patients%20showed%20an%20unmodified%20picture.
Hi Lori, are you able to share my email with bmisslich? Would love to say hello to her if she isn’t too busy, ask her about doctor’s decision-making. Thank you
Hi Elaine. Did the doctor say what the trial is? Am super curious! Thank you
Hi @lila1 You should be able to message @bmisslich directly by clicking on her avitar (photo icon) where you can view their profile. Once you’re on that page, under the avitar is a prompt that says, Send Private Message.
You can also type @bmisslich in any reply to tag them. Have you tried a private message?
I to have low platelets, lymphocytes and IGG but have never been told treatment would have negative impact on these.
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1 ReactionMy hematologist/oncologist at Mayo just asked if I would be part of a trial for splenic marginal zone low grade B cell Lymphoma/Leukemia - what a mouthful! Apparently, most cases are in MN and they are trying to find out why.