Does anyone suffer from Crohn's or colitis?

Heres a more thorough description of my diet that I've had success with. I hope its helpful.

… This is the google search where I found it.

colon calming diet for IBD or colitis

It brings up several pages I found useful.

This has been my north star for several weeks and it is really helping. I eat a piece of white low fiber toast w/Manuka honey first thing in the morning. Two hours later i eat one scrambled egg with no butter and half a piece of toast. For lunch I have two slices rolled up of black forest ham and a bowl of plain white rice, salt only with one serving of canned diced peaches no sugar added, drained. For dinner I have a grilled turkey patty with steamed new potatoes no butter and overcooked green beans (I get the individual serving cups and microwave them).

I have been religious and i am much better but I am still taking 6-9 capsules of pepto bismol a day to get the benefit of its anti bacteria/anti inflammatory properties.

From the google link:

A colon calming diet for inflammatory bowel disease (IBD) or colitis can include different foods depending on whether you're experiencing a flare-up or not:

During a flare-up
Low-fiber foods are easier to digest and less irritating to the gut. You can try:
White grains or starches with less than 2 grams of fiber per serving
Well-cooked vegetables like green beans, carrots, mashed potatoes, asparagus tips, and pureed squash
Canned or soft fruits like peeled apples, bananas, cantaloupe, honeydew, and watermelon

Between flares
You can try eating a wide variety of foods, including:
Fruits and vegetables
Whole grains
Lean protein like lean meats, tofu, fish, and eggs
Low-fat and nonfat dairy products
High-calcium foods like yogurt, kefir, collard greens, and milk if you can tolerate lactose
Foods with probiotics like yogurt, tempeh, kimchi, miso, and sauerkraut
Healthy fats like omega-3 fatty acids, olive oil, and canola oil

Hello friend, Thank you for the information. I am hoping you are continuing to do well on Budesonide along with diet. I continue on the BRAT diet, not feeling well. After dx. 10/2023 lymphocytic colitis I was prescribed Budesonide by my Gasto (for clarity Dr. X) who has treated me for 10 years for IBS. Dr. X prescribed Budesonide incorrectly after pathology showed lymphocytic colitis , too low a dose and too short in duration. Weaned off and less than 3 days latter, colitis flare (she did not perform the 10/1023 colonoscopy- felt my situation was "too complecated- required someone (Dr. G. who deals with difficult cases"). The Dr. X of 10 years feels the I do not have "lymphocytic colitis" strongly asserts it is IBS to this day "learn to live with IBS". I no longer see Dr. X. I do see the Dr. G. who performed the 2023 colonoscopy. I contacted Dr. G. who prescribed another course of Budesonide at the correct dosage and correct duration ( worked well ) and added Cholestyramine 4GM/daily- 4 x daily. I am unable to adhere to the 4 time/day dosing because it must be taken 4-6 hours before Synthoid. To be able to take Cholestyramine 4 x day is impossible unless I set my alarm and forego sleep. Iam able to take Cholestyramine 3 x per day but have had to reduce Cholestyramine after talking with Dr. G to 2 x per day due to severe constipation, pain. bloating and try to increase slowly which is not working. Dr. G. feels it doesn't matter what you eat, no specific diet will help, avoid foods that seem to cause issues.
My diet (between flairs, Lean meats (chicken) no beef, eggs, vegtables- (well cooked)mashed potatoes, squash, spinach, fruit- bananas (haven't tried apples, cantaloupe, honeydew). I can't tolerate yoqurt, low fat products. I do well with rice- dislike it but as you said "will eat gravel". Whole grains- too much fiber. I do not drink coffee, tea, alcohol or smoke. Exercise limited to short walks. I can't participate in the things I enjoy, yoga pilates, horse back riding (best therapy for me) due to severe osteoporosis, hips, lumbar spine. Swimming, no due to eczema and hair loss. Meditation has never been of help.I do have several other disorders, Depression/anxiety (somewhat controlled), hypothyroidism, osteopenia/osteoporosis (treated with ReClast), weight 99-103 at 5'5- dangerously low, androgenic alopecia and TE (see derm. specialized in hair loss (moderately controlled), see a good counselor (issues with my husband, my 60 yo brother who cares for our 95 yo mother who is blind, 34 yo daughter who has recently decided we can no longer care for our grandson after 3 1/2 years. I am isolated with 2 friends. I hope this is helpful.
Any feedback is greatly appreciated.
A few questions:
1. What beverages are you able to tolerate (me only water)
2. Pepto bismol (I have heard about), helpful as you said. I will try but watch for constipation. Start out a reduced dose and increase as tolerated?
3. Have you tried prebiotics/probiotics, help? If so any specific brand.
I do thank you in advance and hope to hear from you.

@pb50
I’m happy that you are back on the appropriate dose of Budesonide.
My collagenous colitis- years ago- was treated with weekly injections of methotrexate x 4 weeks, curing me for then. I was told that it could relapse.
A year or two later I developed other GI symptoms that also seemed to fall in the autoimmune category- I was seen at Mayo eventually. I did fairly well on Budesonide- best on short treatments with prednisone. I would feel totally well for a few days. However, prednisone can’t be taken for a long time.
Eventually, I was treated with Imuran for a few months. It worked well, but side effects of numerous infections.
I also relied on PeptoBismol, I still do when I get symptoms of SIBO.
I have recently restricted my diet- no beef and pork. My intestines are much happier. I do eat chicken, turkey and fish. I also have cut down the size of my portions. It’s always trial and error with GI diets.

I think there has been very good sharing here of different ways to live with lymphocytic/ collagenous colitis.
Budesonide appears to be a safe medication, even for longer periods. It acts locally in the intestines and should not be absorbed into the bloodstream. Tapering speed is important.
I agree that diet definitely is important.
I used to eat all the fiber rich foods recommended for IBS with constipation. It took me a while to realize that I didn’t tolerate high fiber foods.
Now it’s regular white bread, white rice as well as less vegetables- I used to love eating any vegetables- cooked or raw- but now I have lost appetite for them. I can eat dairy, most lactose free, and get some protein from youghurt.
I have also found that eating small portions help- having an extra snack too.

I was diagnosed with crohns this past spring.

I was prescribed infusion with remicade( inflixemab)

Recommended by two GEs.

Only have had two low dose, and my third is August 9th.

But it has helped me tremendously!

I had lost 120# before infusion. But have gained 3O# back. Woo hoo!

Would not recommend the weight loss program!

But I can now eat. Keeping a log on what works and what doesn’t.

Oddly foods that work, sometimes fail. No idea why. But a journal is important. Portions and time of day!

Bread works in small portions.

Good luck. Keep the faith!!

So true on portions for me. I eat small amounts about six times a day now. I eat rice at least twice a day. I buy those little individual servings of cut green beans and microwave them. Same with little servings of no sugar added diced peaches. Pretty boring stuff 🙂

I’m glad it’s helped your arthritis. Sorry it’s not helping with your crohns. !!

My experience has been just the opposite of mine. Inflixemab has really helped my crohns but only a little help with my back arthritis.

Oddly, I fought a palmor wart on my thumb for 50 years. I finally killed it with dry ice. But it came back ( lowered immunity?) just before I started infusion. It grew rapidly.

But just before my third infusion, it disappeared!!

Not only that, I had a non-cancerous growth (like a wart) on my left side. Just above my waist.

I’ve had it for decades!

I’ve had a multitude of doctors look at it, and tell me not to worry about it.

It just fell off the other day!!

Could these two unexpected events be a result of infleximab?

Maybe a bonus result?