Hello Dan. Thanks for sharing. UMMC (University of MS Medical Center) is a training center with doctors from around the world and a great oncology department, but I don't know if it's designated as a CCC. Need to check on that. I have a lot of confidence in my oncologist. He has told me that insurance won't cover chemo without a definite diagnosis of cancer. I've had multiple endoscopies to gather scrapings for testing, as well as multiple MRIs, but none were conclusive for cancer. My CA19-9 blood test for cancer markers was very high prior to my procedure to unblock my bile ducts. Since then, they have continued to drop and are now lower than the standard used for surgery. My oncologist met with the oncology board last week and shared my case. Their conclusion was that the earlier recommendation for surgery is off the table, and I am an atypical patient without the regular signs of cancer. They've now given me a three-month period to continue doing what I normally do, after which I will have further blood work, another MRI, and possibly another endoscopy for scrapings. I'm staying busy, walking every day, going to church, praying, and putting my fate in God's hands.
Thanks for the opportunity to share with someone!