Parkinsonism

Posted by mvanstem @mvanstem, Feb 6 9:31pm

Anyone else diagnosed with Parkinsonism (advanced testing) but no diagnosis of Parkinson’s, nor MSA, nor PSP nor Lewy Bodies. Like to talk? Curious about other routes Parkinsonism can take

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

@hopeful33250

You are asking a good question, @anitaxblack339. The Davis Phinney Foundation is a great resource for all matters about Parkinson's. Here is information about the difference between the two disorders,
--Parkinson's vs. Parkinsonism
https://davisphinneyfoundation.org/parkinsons-vs-parkinsonism/
What type of symptoms are you experiencing?

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Shaking and shakig

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@hopeful33250

What a wonderful exercise program you have developed, @foundryrat743! I am so happy that you posted about this. Movement does create new pathways in the brain and helps us to move easier and also think better.

I look forward to your posts as you continue your program. Will you continue to post?

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Thank you, Teresa! If I can help, even one, fellow Parkinson’s patient, along the road, of dealing with Parkinsonism, or Parkinson’s Disease symptoms, then it is well worth my sharing what exercise, in particular, can do, in helping one deal with stiffness, rigidity, and balance! When I was first diagnosed with PD, it was scary, thinking about what I had heard before, from others, and what I had read, about neurodegenerative diseases. First thing I thought of, is what Lou Gherig went through, suffering with a neurodegenerative disease! Was this neurological ailment that I was diagnosed with, going to restrict my movement, so much, that, eventually, I was going to not be able to move, at all? I did not, at first, have a support system, in place, to allay my fears! Over the years, I’ve developed a good support system, in place, helping me to deal with having Parkinson’s Disease! This Mayo Clinic support group blogging, has proven to be very beneficial to me! I appreciate the opportunity, to participate in this program!

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@foundryrat743

Thank you, Teresa! If I can help, even one, fellow Parkinson’s patient, along the road, of dealing with Parkinsonism, or Parkinson’s Disease symptoms, then it is well worth my sharing what exercise, in particular, can do, in helping one deal with stiffness, rigidity, and balance! When I was first diagnosed with PD, it was scary, thinking about what I had heard before, from others, and what I had read, about neurodegenerative diseases. First thing I thought of, is what Lou Gherig went through, suffering with a neurodegenerative disease! Was this neurological ailment that I was diagnosed with, going to restrict my movement, so much, that, eventually, I was going to not be able to move, at all? I did not, at first, have a support system, in place, to allay my fears! Over the years, I’ve developed a good support system, in place, helping me to deal with having Parkinson’s Disease! This Mayo Clinic support group blogging, has proven to be very beneficial to me! I appreciate the opportunity, to participate in this program!

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You are so right about the importance of finding support, @foundryrat743. I am glad that you found this forum and I'm sure your posts will be helpful to others who are just starting out on this journey with a neurological/movement disorder.

As we have new members, I'll be glad to mention you in the discussions so that you can share with them.

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In reply to @anitaxblack339 "Shaking and shakig" + (show)
@anitaxblack339

Shaking and shakig

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Hello @anitaxblack339

Symptoms of shaking can be a result of tremors or perhaps dyskinesia. Has your doctor told you what is causing the shaking? Have any meds or other therapies been suggested for this problem?

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@hopeful33250

You are so right about the importance of finding support, @foundryrat743. I am glad that you found this forum and I'm sure your posts will be helpful to others who are just starting out on this journey with a neurological/movement disorder.

As we have new members, I'll be glad to mention you in the discussions so that you can share with them.

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Thank you for being so supportive, and positive!

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@louiem777

Hello Everyone,

I was diagnosed with PD in Nov 2023. I am trying to do as much research as I can about PD and Parkinsonism and I found myself here. I just joined and I wanted to say hello.

LouieM

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Exercise, exercise, exercise. Do Chi Tai. Start from Beginners. I have heard Focused Ultrasound is good for tremors.

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@hopeful33250

Hello @anitaxblack339

Symptoms of shaking can be a result of tremors or perhaps dyskinesia. Has your doctor told you what is causing the shaking? Have any meds or other therapies been suggested for this problem?

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No

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In reply to @anitaxblack339 "No" + (show)
@anitaxblack339

@anitaxblack339

So, when you said, "no" does that mean that you do not know the cause of the shaking? What does your doctor say about it?

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