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Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?
Blood Cancers & Disorders | Last Active: Aug 10 12:29pm | Replies (12)Comment receiving replies
Hi @honeymamabee, I expanded the title of your discussion to reflect your question and added it to the Heart & Blood Health support group as well.
You may also be interested in this related discussion to connect with @jeannepasquinucci @naiviv @bobbyknik and many others who have this treatable condition where faulty proteins build up in the heart.
- Cardiac Amyloidosis
https://connect.mayoclinic.org/discussion/cardiac-amyloidosis-1/
Did you discuss with your doctor why a biopsy is not recommended at this time?
Replies to "Hi @honeymamabee, I expanded the title of your discussion to reflect your question and added it..."
My heart Dr did not think a biopsy was warranted- she just wanted to wait 6 months and thought the rests would be more valuable and definitive then. Sure, she doesn't have this problem , so she does not have to live with it for another 6 months until it is found. Yes, I'm ad mad as a wet hen right now- just trying to keep my cool. I'm sure if it were her body, she might feel differently.
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Thank you, Colleen for your input.
Yes, I talked to my Dr last week, and she wants to wait 6 months, and then do another PyP scan. In the meantime, am I just supposed to sit and wait, not knowing whether I have amyloidosis or not. If I do, then not doing anything for 6 months just allows this condition to get a stro ger hold in my body. My heart Dr did not think a heart biopsy was necessary. So she is just going to sit back and wait. I am really upset.