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Want to connect with other post liver transplant patients
Transplants | Last Active: Aug 13, 2023 | Replies (78)Comment receiving replies
After my transplant, I followed the advice of a very dear friend. Every day I took a nap from 12 - 3 PM. Even if I did not sleep, I rested. My husband handled all phone calls and interruptions. Those 3 hours were a blessing. Even today, after 7 years, I get tired when I overdo it. And then I make sure to take a day off and rest. I urge you to talk to your transplant to see if your new medications are having any extra influence on your mental situation. Your transplant team could direct you on getting some mental health care related to all of this, too. We are strong meds and sometimes the doses need to be adjusted.
I remember having the feelings you describe about living with a foreign organ inside; but I had those before my transplant. I feared getting a foreign organ put inside me. I can assure you that it will pass. Try thinking about your future with a healthy liver, and all the things that you will be doing, including being at your daughters graduation! What are some things that you look forward to doing, that you couldn't before transplant? Rosemary
Replies to "After my transplant, I followed the advice of a very dear friend. Every day I took..."
@swordfish, I was requested to visit with you here by @rosemarya. I have more anxiety since my transplant in 2011. This is new for me, as I have a deep faith that allows me to turn my problems over. I know that none of my worrying or fearing a possible future event is not going to have any effect upon whether or not it happens, but the thoughts still creep in, right? For me also the first year was difficult. I was re-hospitalized 9 times. I remember focusing on just getting through each day, taking my meds, and eating. I made no demands on myself beyond the basics. I was grateful to be alive, able to feed and dress myself. I used a walker and wheelchair quite a lot, even in my house. I thought it was so bazaar that I was so weak I could not use the footrest on my recliner. Me, the pack mule for travelling and shopping. I lost a great deal of independence, needing assistance at times to bathe and requiring someone to drive me anywhere I needed to go. I think it is interesting the different things that people are concerned about. I missed my job travelling all over the state, and driving 200 miles in a day for hours of shopping. I missed doing the grocery shopping and keeping my kitchen organized. And here we are six years later and my kitchen is still disorganized! haha I hope you find a way to come to terms with your thoughts of a foreign organ in your body. I did not have that issue, but after I met my donor's father I felt a responsibility to care for myself and this organ to the best of my ability. After all, I am here because she is not. I do believe things will improve for you. Right now you just need to focus on your healing. Blessings to you.
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REALY APPRECIATE YOUR INPUT,THANKU, I'VE BEEN TRYING TO REACH OTHERS TO SEE<br>IF THEESE WORRIES,PAINS R NORMAL.LOOKING FORWARD TO CONVERSING WTH U SOME<br>MORE,THANKU EMMETT<br><br>