← Return to Endometrial stromal sarcoma (ESS): What treatment did you get?

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@gidget6

Hi! I had a hysterectomy for fibroids more than 10 years ago and everything was fine then. Last year, thanks to an elective heart score scan, a small tumor and numerous tiny spots were discovered. I had the small tumor removed immediately. After a very long process like 2 1/2 months of waiting for pathology from Mayo's and I believe in Texas, it was determined that mine is slow-growing ESS. I'm on a hormone blocker wiping out the estrogen. (I understand this medicine is also used to treat Brest cancer but I don't remember for sure). Every other test I've had is clear. No chemo or radiation. I've had CT scans every 4 months now and lab work every 2 months. On supplements now calcium, magnesium and exercise most days to maintain good bone density/strength. It throws you into immediate menopause so think those symptoms, too. That scan saved/extended my life as I am in my mid 60s and very healthy(diet and exercise) and asymptomatic. A freak of nature thing I guess. I am thankful and receive good care. It is so, so rare indeed. Blessings to you and all...

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Replies to "Hi! I had a hysterectomy for fibroids more than 10 years ago and everything was fine..."

Thank you. So the tumor and tiny spots discovered in pelvis area? If the hysterectomy was all clear 10yrs back, how can it be endometrial sarcoma now?