Connect
← Return to Stopping Myeloma at the MGUS Stage
Discussion
Stopping Myeloma at the MGUS Stage
Blood Cancers & Disorders | Last Active: Sep 14 1:28pm | Replies (27)Comment receiving replies
The study is done at Memorial Sloan Kettering Cancer Center out of New York City. I live in PA (near Gettysburg) and must travel to one of their New Jersey centers to do my labs. (The Monmouth center would be closest to you.) Most of my visits are able to be done through Telehealth. You can look up Dr. Urvi Shah Nutrivention Study on YouTube to find some videos about it. (I am in Nutrivention 2 & 3 studies) I believe they are still admitting patients, but the videos have information on contacting them about enrollment. My regular hem/onc is through Penn State Health and he never mentioned anything to me about using nutrition or supplements to help slow down the disease. But then, as you will hear on the videos, most doctors have very little schooling in nutrition and don't advocate for natural remedies. Good luck to you!
Replies to "The study is done at Memorial Sloan Kettering Cancer Center out of New York City. I..."
Nutrivention seems to possibly imply nutritional intervention. I wonder if this study is examining whether a meat-free diet will cause MGUS to stop progressing. It’s an interesting proposition. My husband and I were never big meat eaters but we stopped eating meat entirely almost 20 years ago. While my disease has “progressed” from one simple Mspike of 0.4 kappa, in 19 years I now have three bands, one including Lambda, mostly light chains and 0.5 M spike, but have not progressed to actual myeloma. Thank you for all your helpful information and best to you. Carole
Connect
I wish we had a study like this in Canada.