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Conflicting Diagnosis AMD or Pattern Dystrophy
Eye Conditions | Last Active: Aug 5 8:39am | Replies (5)Comment receiving replies
Hi,
Thank you for the information. It is so upsetting and scary to receive conflicting diagnoses. Unfortunately, I learned this week that my father had been diagnosed with AMD at the age of 84, not sure how long he may have had it before the diagnosis. and my 89 year old aunt, his sister, has had it for at least 10 years. I am very confused why this information has never been shared with me AND I am still confused why I would develop this at 25 to 30 years younger than most people. Here is my new dilemma. Yes, I learned AMD is in my genes but it is rare to be diagnosed before 55 years old, I told the doctors it does not run in my family because I believed it did not. Then I was diagnosed with most likely having a Pattern dystrophy which is also rare and does not run in my family (that I know of). Now what? I inform the retina specialist that I learned AMD does run in my family, not as young as I, but it does run in the family, will he change my diagnosis or will I still be in a whirlwind of sadness and confusion? The two diseases are similar, yet different.
Doesn't a specialist have special machines to distinguish between diseases? I should probably get a third opinion but I am petrified.
I am praying every single day. I pray for God to have mercy on me. I pray for him to please stop the progression of whatever it is I may have. I don't know anyone with any eye diseases at my age that I can talk to or get more information. Google only adds to the stress with worse case scenarios, How bad are things going to get for me, and how soon???
I feel so empty inside like I have a huge hole through the middle of my chest.
Please pray for me to make it through this. Thank you
PTL
Replies to "Hi, Thank you for the information. It is so upsetting and scary to receive conflicting diagnoses...."
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Hi PTL,
You are doing the right thing by praying and continuing to pray! I will pray for you also. God is there for you and will make sure your eye problems all turn out right. Do you have some vision problems now or are the doctors just telling you that you have problems? If you can see good I would merely live your life and forget the eye doctors! Even if you have to cancel some appointments. After all, it's your eyes and your money that's paying for the appointments! You are in control. If your eyes start to have problems, then go back to the eye doctors. Just because your relatives had some eye problems doesn't necessarily mean you will have those problems. My grandmother died of breast cancer and I never had that.
Keep praying like you are doing and have faith. Put everything in God's hands and then wait for the miracles. Maybe even start reading the Bible again if you aren't already.
My husband died 3 weeks ago and I felt so lost. The insurance was lapsing, I wasn't sure of the exact amount of money I'd have between the pension and social security; (I was getting conflicting messages.) I had no prescription coverage, the refrigerator stopped working, the hall light switch quit working, a light bulb blew out in the bathroom and was stuck in the light and wouldn't come out! I just sat down and had a long talk with God and for a while, nothing happened. Then I found a new insurance with no charge except co-pays and prescription coverage. I finally got a final amount for the pension and social security and it's OK and livable. The refrigerator fixed itself but not until the repair guy came out and he charges $139. He wouldn't take a scent! I thought that was so nice! I live in a mobile home park and the manager came by and noticed I had no hall light. He fixed it for me and got the stuck light bulb out all for free. See? You just have to have faith and pray. It does work! Let God help you and also let him take care of the future. Besides, not as many people believe in God anymore like they used to. I think he enjoys hearing from those of us who still believe in him. God's probably lonely.
I wish you the best and I will continue to remember you in my prayers.
PML