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Spinal Infarct and Neuropathy

Neuropathy | Last Active: Aug 4 8:20am | Replies (4)

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@roxiesmom13

My husband has neuropathy from feet to chest. He was just diagnosed with a rare B12 deficiency where it shows up ok in blood but doesn't get into the cells. This is a relatively new thing being studied by only two hospitals in us UCSF being one. They have started experimenting on what happens with daily.high potency b12 injections for 30 days then 3 times a week. So thankful a local neurologist.had read about it and sent him to SF. It may be too late for him as the spinal cord is so involved but the fact he has an answer is something.

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Replies to "My husband has neuropathy from feet to chest. He was just diagnosed with a rare B12..."

Thank you for sharing an update on your husband @roxiesmom13. It is great to hear that you have a local neurologist with information on the new treatment. Hoping that the treatment helps. It sounds similar to these 2 research papers I found on the topic if you want more information.

-- A Brief Overview of the Diagnosis and Treatment of Cobalamin (B12) Deficiency:
https://journals.sagepub.com/doi/full/10.1177/03795721241229500
-- Efficacy of different routes of vitamin B12 supplementation for the treatment of patients with vitamin B12 deficiency: A systematic review and network meta-analysis:
https://link.springer.com/article/10.1007/s11845-023-03602-4