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Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Blood Cancers & Disorders | Last Active: Aug 10 12:29pm | Replies (12)
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@honeymamabee

But - will ultra sound show if I have the amyloid protein in any heart tissue or any other tissue for that matter? Everything that I gave read from Mayo Clinic about amyloidosis is that a biopsy is the gold standard for diagnosing amyloid. Is there anyone who can give me a definitive answer to this? Can you?

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Replies to "But - will ultra sound show if I have the amyloid protein in any heart tissue..."
Colleen Young, Connect Director | @colleenyoung | Aug 4 8:52pm

Hi @honeymamabee, I expanded the title of your discussion to reflect your question and added it to the Heart & Blood Health support group as well.

You may also be interested in this related discussion to connect with @jeannepasquinucci @naiviv @bobbyknik and many others who have this treatable condition where faulty proteins build up in the heart.

- Cardiac Amyloidosis
https://connect.mayoclinic.org/discussion/cardiac-amyloidosis-1/
Did you discuss with your doctor why a biopsy is not recommended at this time?

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peggyjean | @peggyjean | Aug 8 9:09am

My first sign of Amyloidosis was increased protein in my urine….. Had a 24hr urine & had an abnormal amount protein & lots of blood tests from a local doctor with no conclusive answers…. My main complaint at the time was I was lethargic & leg aches. I then went to a urologist (on my own) who did my biopsy of my kidneys & the biopsy was sent to Mayo Clinic in Rochester, Mn. Confirmed the presence of amyloidosis…. The start of my treatment began…. My amyloidosis was in my kidneys & digestive tract, not my heart as many are…. Mayo did many tests on my heart…. Prayers For Answers & Treatment For God’s Best…

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